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2006 National Public Policy Program

Introduction

Research

Medicare

Medicaid and Long-Term Care

Alzheimer Programs

Research Introduction

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Additional Investment Needed

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Failure to Address Alzheimer's Disease

Research Introduction


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Increase funding for Alzheimer research at NIH by $60 million to maintain the momentum and to hasten discovery of effective preventions and treatments.

Alzheimer’s disease research is a relatively new scientific enterprise, much younger than other fields like heart disease and cancer that have comparable impact on an aging population. Dr. Alois Alzheimer identified the disease a century ago, but the United States did not begin a serious investment in Alzheimer research until the mid-1980s, when the National Institute on Aging (NIA) established the Office of Alzheimer’s Research under director T. Franklin Williams, who stated, “We made Alzheimer’s research our highest priority.”

It was not until 1991 that funding passed the $150 million mark. Since then, Congress has slowly and steadily increased its commitment to Alzheimer research. That investment is paying off.

Alzheimer’s disease and related dementias are now among the most exciting fields of scientific inquiry. The number of investigators actively pursuing answers has grown from a handful of researchers three decades ago to the more than 5,000 who attended the 9th Annual International Conference on Alzheimer’s Disease and Related Disorders in 2004. As a result of their work, we now understand the basic mechanisms of the disease, and those findings are being translated to clinical practice.

Diagnosis can now be done with a high degree of certainty. Five approved drugs for treating symptoms are now on the market, and at least 26 additional compounds are being tested in publicly and industry supported clinical trials. In addition, evidence points to lifestyle changes that may be effective in reducing Alzheimer risk.

From a scientist’s point of view, progress on Alzheimer’s has exceeded all expectations. For the 4.5 million people in the United States living with the disease – and the families caring for them – the answers are not coming fast enough. They desperately need effective treatments now.

Neither are the answers coming fast enough for 11 to 16 million baby boomers who face Alzheimer’s in their future. The disease process may very well have already begun, and they need a way to stop it before it is too late. The answers are not coming fast enough for state and federal officials whose Medicare and Medicaid budgets will spin out of control if Alzheimer’s disease continues to grow unchecked.

An army of Alzheimer researchers is poised to find effective ways to prevent and treat Alzheimer’s disease. This is not the time to force them to retreat, but that is exactly what will happen unless Congress maintains funding at levels sufficient to seize the critical scientific opportunities now at hand.

Between 1998 and 2003, Congress doubled total funding for the National Institutes of Health, which brought an increase of $302 million to the study of Alzheimer’s disease. Funding for Alzheimer research peaked at $658 million in 2003 (a mere 2.4 percent of the total NIH budget that year). Since then, it has started to slip, down to $652 million in 2006. The President’s budget proposal for 2007 would take it lower, to $645 million. When these cuts are combined with the rising costs of medical research and applied to the rapidly expanding opportunities in Alzheimer science, they will continue to take their toll.


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For the 4.5 million people in the United States living with the disease – and the families caring for them – the answers are not coming fast enough. They desperately need effective treatments now.

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