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Central Ohio Chapter

Newsletter Summer 2009
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These are some of the stories you will find in the 2009 Summer Newsletter.
Click here to view the entire 2009 Summer Newsletter.

Health Care Reform

The health care reform debate continues to dominate the national agenda in Washington, D.C. Congress has set its goal to have a health care bill completed by the end of the summer. The talk now is “by year’s end.”

However, our message to Congress remains clear: Congress must pass health care reform that includes long-term care services and supports this year.

We are making progress on our health care reform priorities. Current proposals include:
• Medicare care coordination services for people with cognitive impairments and their caregivers
• Long-term care services and supports

As of July 1, 2009, 108 members of Congress have co-sponsored the Ending the Medicare Disability Waiting Period Act of 2009 (S.700/H.R.1708) including Senator Brown, Representatives Wilson (OH06), Kucinich (OH10), Sutton (OH13), Kilroy (OH15), Ryan (OH17) and Space (OH18).

What Can We Do Now?
We must keep the pressure on Congress. Join other Alzheimer’s advocates by participating in local activities with your members of Congress by visiting district offices and attending public meetings. To volunteer for local advocacy efforts check out Central Ohio Chapter’s web site www.alz.org/centralohio and sign up as an advocate volunteer or contact gthomas@alz.org.

Click here to view the entire 2009 Summer Newsletter.


People Who Make a Difference


Meet the Scheiderers

Edgar and Marjorie Scheiderer, now married more than 55 years grew up five miles apart in Union County. It’s hard to imagine a harder working couple when it comes to community involvement. Edgar is newly appointed to the Central Ohio Area Agency on Aging Advisory Council filling the vacancy left by Marjorie after she completed two terms. She is presently an advisory board member for Union County Senior Services. At the local voting precinct, she served as a presiding judge and Edgar was her assistant. Edgar and Marjorie are a team. When it comes to advocating for the needs of older adults, you will find them front row center, whether in meetings with legislators or county commissioners. Working to bring services for families and caregivers facing the challenges of living with Alzheimer’s or other related dementia diseases is just one of the ways they go the extra mile. Thank you Edgar and Marjorie.

Columbus Rotaract Club

The members of the Columbus Rotaract Club should be proud of the hard work they put in the golf scramble and the great benefit it brought our community. The $6,000 raised at the event will help us provide care consultation, education, advocacy and support research programs that touch the lives of more than 24,000 central Ohioans suffering from Alzheimer’s disease.


Click here to view the entire 2009 Summer Newsletter.



2009 Gala: Dancing with the Stars - Paint the Town Purple

Friday, October 9, 2009 • 7:00pm
The Renaissance Hotel, 50 N. Third Street, Columbus, OH 43215

Please join us as we Paint the Town Purple at the 21st Annual Alzheimer’s Association Fall Gala. Back by popular demand is entertainment provided by central Ohio’s version of Dancing with the Stars.

Event Chairman David P. Blom, President and Chief Executive Officer of OhioHealth and emcee Andrea Cambern of WBNS 10TV will lead us through an entertaining and meaningful evening that supports a better life for those living with Alzheimer’s disease.

Be in attendance for the presentation of the Ralph and Billie Hazelbaker Award to John and Helen Cooper for their many years of support of the Alzheimer’s Association, Central Ohio Chapter.

Celebrity Dancers include: Jamie Allen, Maureen Andrews, Dr. Bobby Moore, Cindy and David Stanley, and Claudia Walter. Celebrity Judges include: David Butcher, Jessica Germain, Elaine Goldberg, Stephanie Hightower, Jacob Neal, Andrew Quinn, and Bill Wells.

For sponsorship and ticket information visit www.alz.org/centralohio and click on Special Events or contact Suzy Rudolph at 614-442-2015 or srudolph@alz.org.

Click here to view the entire 2009 Summer Newsletter.


Speaking Out

By Mari Dannhauer, MSW, LSW

The good news about Alzheimer’s care today is that more and more people living with dementia have found their voice and are speaking out. The even better news is that those of us in the business of providing consultation and services for those affected by a growing range of dementia-related diseases are actively listening and advocating for changes in the medical community.

The 2008 report “Voices of Alzheimer's Disease” examined the rich dialogue gathered at four regional town hall meetings for people facing early stage Alzheimer’s disease. More than 800 participants, including 300 people living with the disease, declared that things need to change especially the public's perceptions about Alzheimer's and those who live with it. Two major issue areas surfaced: diagnostic challenges and dissatisfying interactions with the medical community.

Principles for a Dignified Diagnosis contain insights from people living with the disease on how to improve that experience. This new and innovative publication is co-authored by Dr. Steve Hume, a member of the Alzheimer's Association Early Stage Advisory Group, who was diagnosed with younger-onset Alzheimer’s disease at the age of 61. “The face of Alzheimer’s has changed in recent years, and Principles for a Dignified Diagnosis adds a voice to that face,” said Dr. Hume. “It is important that we not only tell clinicians we want a dignified diagnosis, but also teach them what that means. There is a lot we can learn from each other.”

American Medical Association (AMA) President Nancy Nielsen, M.D., said, “Patients with Alzheimer’s disease face many challenges as they strive to maintain a normal life, and physicians are committed to helping ease the burden with high quality health care. The AMA applauds the Alzheimer’s Association for bringing forward the patients’ perspective on compassionate care, as Alzheimer’s patients, their families and their physicians battle the disease together.”


Click here to view the entire 2009 Summer Newsletter.