Expand eligibility, availability and accessibility for services that allow for consumer choice. In order to expand home and community based services, the Alzheimer’s Association believes in:
- Appropriate and cost effective long-term care options, including in-home care, adult day services and residential care settings, with emphasis on home and community-based services, designed to preserve the person’s sense of choice, dignity and access to a safe living environment.
- A person-centered delivery system that tailors services to the needs of the person rather than priorities of regulation or reimbursement.
- Access to caregiver support services, including respite and training, regardless of age, income or locality.
- A flexible delivery systems that provides consumer choice of providers in the community, including agency and independent providers, and the option for consumers to manage their own services.
- Adequate funding to support all long-term care services needed, regardless of the setting or location.
Promote effective, appropriate and ongoing education for all staff who make decisions or provide services that impact the quality of life of the person with dementia, including owners, managers and direct care staff. The Alzheimer's Association believes in:
- Staffing levels adequate to ensure proper health and quality of life at all times.
- Staff sufficiently trained in all aspects of care, including dementia and Alzheimer care.
- Staff justly compensated for the quality of their work.
- Staff opportunities for career growth.
- Appropriate certification and/or licensure of staff.
- Careful staff screening tools to guarantee that all staff have the competencies, skills and values for providing excellent and consistent dementia care.
Monitor and evaluate the impact of long-term care regulations, reimbursement, consumer standards and other compliance activities on the lives of people with dementia and their families, throughout the continuum of care. The Alzheimer's Association believes in:
- State licensure, regulatory and enforcement mechanisms that are efficient, effective and flexible in the best interest of each person with dementia.
- A restructuring of Illinois’ long-term care system that ensures the accessibility to the continuum of dementia care services, including quality options for home and community-based care.
- Effective and ongoing dementia training for all state staff engaged in regulatory, investigative and enforcement activities.
- Support for people with dementia and families in planning for future long-term care needs and the protection of their assets.
- Ongoing collaboration with the three Alzheimer Disease Research Centers and the four Alzheimer’s Association Chapters serving Illinois.
- The advancement of research and support of any legitimate scientific avenue that offers the potential to find a cure, within appropriate boundaries, in keeping with our mission to eliminate Alzheimer's disease.
Protect the care and quality of life of the most frail citizens of Illinois with dementia, who depend on Medicaid support, through a flexible system that provides care in the most effective setting of choice. Ensure these funds follow the recipient as they choose services throughout the continuum of care. The Alzheimer's Association believes in:
- Maintaining the Medicaid long-term care safety net, and development of options for family-centered home and community-based care.
- Medicaid funds following the recipient whether they choose to receive care through home or community-based services, or in other long term care settings.
- Ensuring that people with dementia have access to affordable and appropriate services without impoverishing their spouses.
For more information, contact: Public Policy/Advocacy by mail at Alzheimer’s Association Central Illinois Chapter, 606 W. Glen Avenue, Peoria, IL 61614; by phone at 1.800.272.3900; by fax at 309.681.1101; or by e-mail at firstname.lastname@example.org.