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Nov 2013
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Champagne, Chocolate-Covered Strawberries, Exquisite Gifts and Inspiring Stories

We still have tickets available for the Alzheimer’s Association’s 22nd annual Chocolate Sunday. The event will begin at 11:30 a.m. on Sunday, November 24, at the Ritz Charles, located at 12156 North Meridian Street in Carmel. Attendees will enjoy chocolate delicacies, gourmet brunch and the opportunity to bid on silent auction items, all to fund Alzheimer’s care, support and research.

The silent auction will include gift baskets, home décor, vacations, jewelry, and more. Some of the live auction items include a five-night stay at a Vail, Colorado condo, a backyard barbeque for eight catered by Ruth’s Chris Steak House, a South African photo safari for two, two tickets to the Late Show with David Letterman, an afternoon with Bob Jenkins (for up to four people, includes lunch at Cerulean and a special tour of the Indianapolis Motor Speedway), and more.

Our emcee, retired Channel 13 Chief Meteorologist Bob Gregory, returns this year. The keynote speaker is Alzheimer's Association Greater Indiana Chapter Advocate, Jason Hatke, 17, and his father, Mike, who was diagnosed with younger-onset Alzheimer’s at the age of 46, and his mother Rita, Ambassador of the Association.

Families and corporate sponsors are encouraged to get involved by reserving their own table or buying individual tickets for the event. Tickets are available for $125 at the benefactor level, $100 at the patron level and $85 at the friend level.  Families can purchase tables of 10 for $1,000. Corporate sponsorships are available at $1,500.

Attendees can bid on items directly from their cell phones through text bidding or online bidding. A select few items will be available online for early bidding. Bidders can pre-register at qtego.net/auc/alzin.

For more information regarding the event, please contact Anne Harris ataharris@alz.org or call 800.272.3900. 

#GivingTuesday

It’s the beginning of the Holiday season, which means Black Friday and Cyber Monday are just around the corner. Now, there’s a day to give back. Tuesday, December 3, is Giving Tuesday, where people across the nation come together to make a difference in the world around them.
 
#GivingTuesday is a special call to action and creates a national day of giving around the annual shopping and spending season to inspire every day giving. It began to encourage generosity among families and individuals to be make a difference in the community.
 
This year we encourage you to take part and do a little big thing for the Alzheimer’s Association during #GivingTuesday. Here are five ways you can do a little big thing this holiday season to help end Alzheimer's:

1) Make a Donation
2) Participate in an Event
3) Learn the Facts
4) Become an Advocate
5) Get the Help You Need

Include #EndAlz on Facebook or Twitter, with a picture or description of how you do a little big thing and be entered into a drawing.
For more information and to get involved, click here.

Thank You, Walkers!

The Alzheimer’s Association Greater Indiana Chapter would like to thank the thousands of Walk to End Alzheimer's® participants who helped us raise more than $1.5 million statewide! Funds raised will be used for Alzheimer's care, support and research. Special thanks to our statewide sponsors, American Senior Communities, Eli Lilly and Company and Kittle's Furniture, and to our local sponsors in each community. To view our top 50 teams, click here.

To help the Alzheimer’s Association make our future events even more successful, please take a moment to complete our Post-Walk Survey.

Everyday Battles

There was a trip planned to travel to Brown County with my mom. We were supposed to ride charter buses to Southern Indiana to see the changing of the leaves, have a picnic in the park, and do a little shopping in the town of Nashville, IN. This was all supposed to be done with my mom who has severe Alzheimer's.

I agreed to go on the trip thinking that this might be the last time I would be able to do something like this with her. I was envisioning us oooing and ahhing at the beauty of fall. I did not think this was out of the question since last time I had been outdoors with Mom, she was pointing out the flowers, the trees, and the natural beauty around her as if they had been created just for her. I had high hopes for something similar on our trip.

I should not have glamorized this trip in my head. I should have gone with the mantra that has worked so many times before, “No expectations. No disappointments.”
I woke up to a wet, drizzly day, but did not let the rain dampen my spirits, no pun intended. I simply took along my raincoat and a pair of rain boots in case I needed them. I went into this trip with a positive outlook.

When I arrived at the facility where she lives, I greeted her with my usual, “Hi Mom! It's Molly, your daughter.” She looked out of it and tired. It took her a little time to be ok with my presence. Once I said we were going on a trip, she perked up and was excited. We loaded ourselves and our gear on the bus and started our 90 minutes journey south.

The bus trip was uneventful. I had been smart enough to pack some snacks, so I fed her some apples as we talked.  All was fine for most of the trip, but by the end of the 90 minutes she was showing signs of irritation.

We got off the bus and began a day of stress for both of us. She moved like a snail. One of the symptoms of Alzheimer's is losing depth perception, and the unfamiliar terrain was hard her for. I had her on my arm, and I constantly had to tell her when to step up and step down, or warn if the terrain was uneven. She even let out a few shrieks of terror, as she was sure she was about to tumble to the ground. All of this just to get her to the restroom and back.

I told myself that it was a choice to be stressed. I told myself to take a deep breath and to enjoy the moment.

The next hour we were at the picnic. An hour of me trying to explain to my mother how to sit on a picnic bench and trying to help her do it, trying to feed her lunch, and letting her be when she screamed at me to “Give her two minutes!” out of nowhere.

Again the reminders, take a deep breath, smile, and enjoy your time with your mom.

But we were halfway through the trip and on the inside I was a mess. My chest was tight from the anxiety. I was on the verge of tears every 20 minutes or so. Outside I was playing the faithful daughter, the strong, supportive, loving daughter, but all I really wanted was for the day to be over.

On to Nashville to get Mom the ice cream that I had been promising her all day. She was so excited for that ice cream that the child within her came out to play. When I went to order a cup of chocolate chip, she indicated that she couldn't get any because she didn't have any money. I reassured her that I would pay for it and her giddiness came back. She ate that ice cream as if she had never tasted something so heavenly before. I couldn't feed it to her fast enough. We laughed at her enjoyment, and I was glad that I could make her feel so happy.

Again the reminders, look at the bright side, you can do this, and she is having fun now, savor it.

I had to be happy with her enjoyment, and resist the disappointment that was brewing in my heart. You see, that ice cream shop had pictures all over it of me, my husband, and my former teammates. For two years in a row we had won an adventure race put on by the owners of the shop. Mom had no idea. She couldn't see or process the accomplishments of her little girl.

Push away the disappointment. Push away the stress. Smile. This is supposed to be fun.

We went to a coffee shop to sit with another resident and staff member. There was no shopping to do. No trinkets to buy. No Christmas ornament that she had to buy for her grandkids. She no longer knows she has grandkids. Instead there was hot chocolate and a warm place to sit on a drizzly day.

People stared as if they didn’t understand what could be wrong with her. She doesn't look like she should need help. They don't see the vacancy of her stare. They don't understand that she doesn't know how to pick up her mug.

Just stay in your caretaker role. The staff experiences this every day.  Don't think of her as your mom. This is what I tried to tell myself, albeit without success.

We went back to meet the bus, and there was a delay in leaving as not everyone was on the correct bus. Mom fell asleep and I thought, “Thank goodness. She must be exhausted.” I understood how hard her mind and body had to work all day to get through the trip. All was peaceful until she woke up and we were still sitting there on the bus.

She was confused and disoriented and wanted to get off of the bus NOW.  She stood up and grabbed at the seat in front of her, startling the lady sitting in it. She was angry and wanted to get off the bus. I did everything in my power to calmly explain that she must stay on the bus and that we would be leaving soon. She said she didn’t have to stay on the bus and then grabbed at the window trying to get out. She was angry and panicked and insisted on leaving. I stayed calm and tried to get her to sit down. I honestly don't have any idea what I said or did to finally get her to sit down and calm down. One minute she was happy, the next in a rage. Despite a staff member leaning over and whispering, “Good job,” I was a mess inside.

You are almost home. Deep breaths. Smile. Find your inner peace.

On the way back to Indianapolis, we had broken conversations. Despite the anxiety I was feeling, I managed to look at her and study her face. I took her hand, felt her soft skin, and appreciated her beauty. It calmed her down. It helped calm me down.

I admit that I went into the trip with higher expectations than I should have. I knew better than that. I had hoped for a fun trip with smiles and pictures in front of trees with leaves afire with color, but instead endured a day of stress and anxiety.  It was a day that didn't end with the trip, but bled into the next three days. The experiences of that trip were hard to process and to let go. Despite all my experience with my mother’s disease, despite living the nightmare, I still wanted the fairytale of having my mother be as she was before Alzheimer’s.

In Robert Lewis Stevenson’s novel, Dr. Jekyll and Mr. Hyde, the main character says: "I was slowly losing hold of my original and better self, and becoming slowly incorporated with my second and worse." My mother already has lost this battle; almost all traces of her rational, “good” self have been subsumed by her irrational diseased self. There are fewer days when she knows who I am. There will be fewer adventures outside the confines of her locked down ward.

Now I, too, must keep working to accept the new self that I call Mom. As with Mom, dueling forces battle within me. My irrational self wants her mother back, while the rational one realizes that this can never happen.  It is easy to “know” this, and it is possible to say it and even to write it down, but, so far, it is impossible to accept it completely in my heart of hearts.

My mom’s original self, the woman without Alzheimer's, slips further away hour by hour.  Although I fight my own battle of emotions to accept this and some days I don’t think I can, I know that I am supported by an army of warriors at my back. They will help me in my struggle to make peace with myself.  And with their help, I will make sure that my mom, even if she doesn't remember me, at least knows there is someone with her who is her ally, her companion, her protector.  My mother will not go into the darkness by herself. I will be with her on her bleak journey.

Molly Godby lives with her family of four in Zionsville, Indiana. In 2007, her mother, Lee, was diagnosed with dementia with probable onset of Alzheimer's. Molly has been caring for her since. Molly is a stay-at-home mother of two. She enjoys writing, doing CrossFit and spending time with her family and friends. She also has a personal blog that you can read at www.abundantlyawesome.blogspot.com.


 

Alzheimer's Association

Our vision is a world without Alzheimer's
Formed in 1980, the Alzheimer's Association is the world's leading voluntary health organization in Alzheimer's care, support and research.