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In My Community
For You, the Person With Alzheimer's
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You may be in the midst of the journey of Alzheimer's, but we want you to know we are by your side every step of the way. The Heart of America Chapter has resources, educational programs, and services for those with memory loss, their families, and care partners. If you don't see the resources you need within the links below, please call us directly at 913.831.3888 or toll free at 1.800.272.3900. We are here to help.


Support

24-hour Information and Support

One-to-One Conversation

Early Stage Support Groups

Social Engagement Programs

Message Boards

Early Stage Blog

Education

Early Stage Volunteers

Finding Purpose in Advocacy

Legal Issues

Let's Talk About Dementia

So You Have Been Newly Diagnosed With Alzheimer's

Resources

Library

TrialMatch

MedicAlert + Safe Return

Newsletter

Multilingual

Support

24-Hour Information and Support

The Alzheimer's Association Information and Support line operates 24 hours a day, seven days a week, in 140 languages. Our staff is highly trained and knowledgeable about all aspects of Alzheimer’s disease. Call us if you have questions about:

  • Alzheimer’s disease or memory loss, medications and treatment options, brain health and care options

  • How the Association can help you

  • Services available in your community and referrals

You can also call us for emotional support –– as often as you need. We know that living with Alzheimer’s can be overwhelming at times. Remember, we are here for you –– all day, every day.

E-mail help

If you prefer, send us a message at jeanne.reeder@alz.org. We check the e-mail box daily and will respond to your inquiry within 48 hours.

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One-to-One Conversation

Our professional staff is dedicated to helping you navigate through the difficult decisions and uncertainties that individuals with Alzheimer's and their families face. Contact a Chapter office near you to arrange a one-to-one conversation between you and a Heart of America staff member. Staff will answer your questions about what early stage Alzheimer's disease means and help you with management strategies. Contact a Chapter office near you.

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Early Stage Support Groups

Prairie Village, Topeka, St. Joseph, and Platte Woods
Early stage support groups provide information, discussion and inspiration through an honest exchange of how each are coping and continuing on with good and productive lives. If you are considering joining the early stage support group, contact a Heart of America staff (listed below) for an orientation meeting prior to attendance. The orientation meeting provides and opportunity to ask questions and insure the group is the right fit for your needs.

Prairie Village: Michelle Niedens, 913.831.3888
Group meets on the 1st and 3rd Tuesday of each month
Main Chapter Office, 3846 W. 75th Street
Prairie Village, KS
5:45 - 7:15 p.m.

Topeka: Debbie Holroyd, 785.271.1844
Group meets the 1st Wednesday of the month
First Congregational Church
1701 SW Collins Avenue
Topeka, KS
4:00 - 5:30 p.m.

St. Joseph: Brenda Gregg, 816.364.4467
Group meets the last Tuesday of the month
Northwest Missouri Regional Office
2nd Floor of the First Christian Church
10th and Faraon
St. Joseph, MO
7:00 - 8:00 p.m.

Platte Woods: Karen Clond, 913.831.3888
Group meets the 3rd Thursday of the month
Platte Woods United Methodist Church
Rooms 252 and 253
7310 NW Prairie View Road
Platte Woods, MO
2:30 - 4:00 p.m.

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Social Engagement Programs

Memories in the Making

Memories in the Making is an innovative art program that provides persons with Alzheimer's disease and other dementias with a means of creative expression through watercolor. Experienced volunteer artists work with community groups on a weekly basis. While this is not an early stage-specific group, individuals in the early stages do attend. No prior art experience is required. the following list includes Memories in the Making sites that are open to the public, however, space is limited. Please contact the numbers listed prior to attending.

Chillicothe, MO 64601
Every Wednesday
10 - 11:00 a.m.
Calvary Baptist church
206 Locust
Call Brenda Gregg at 816.364.4467

Kansas City, MO 64130
Second Tuesday
10 - 11:15 a.m.
Mary L. Kelly Community Center (formerly known as the Graceland Elementary School)
2803 E. 51st Street
Call Trish Weatherspoon at 816.361.6604

Prairie Village, KS 66208
2nd and 4th Thursdays of each month
10 - 11:15 a.m.
Main Chapter Office
3846 W. 75th Street
Call Karen Clond at 913.831.3888

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Fish Tales

A reminiscence and discussion group for individuals with earlier stage dementia who enjoy the outdoors and various nature related hobbies and experiences. Light refreshments provided. Activities include structured discussion, speakers from the Bass Pro environment, group member sharing and time to visit with individuals with shared interests. 2nd Tuesdays of the month. 2:30 p.m. to 3:30 p.m. 12051 Bass Pro Drive, Olathe, KS. For more information contact Trish Weatherspoon at 913-831-3888 or email tweatherspoon@alz.org.

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Jam Sessions

An informal jam session for musicians with early stage memory loss and musicians who are caregivers. 4th Thursdays of the month. 1:00 p.m. to 2:00 p.m. Alzheimer's Association Education Center, 3856 W. 75th Street, Prairie Village, KS. For more information contact Karen Clond at 913-831-3888 or email kclond@alz.org.

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Nelson-Atkins Museum of Art

Art gallery experiences for individuals with memory loss. For dates and more information contact Karen Clond at 913-831-3888 or email kclond@alz.org.

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Message Boards

The Alzheimer’s Association message boards and chat rooms provide an online community for persons with Alzheimer's, caregivers and care providers. Our message boards have thousands of registered members from around the United States and thousands more who refer to the stories and information that is available 24 hours a day.

Join the Alzheimer’s Association online community.

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Early Stage Blog

This blog provides a venue for individuals in the early stage of memory loss to share stories of how they live meaningful lives while coping with Alzheimer's disease and related disorders.

View the latest Early Stage Blog

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Education

Early Stage Volunteers
Early stage volunteers can share personal stories of how they live meaningful, complete lives while coping with Alzheimer's disease or related disorders. Additionally, early stage volunteers may choose to join the Chapter's advocacy efforts at a local and/or state level. Volunteers talk with schools, community groups, legislatures and the media regarding their experience with Alzheimer's disease in order to increase awareness and encourage early diagnosis. Anyone interested in being an early stage volunteer and being part of the Alzheimer's disease advocacy efforts is encouraged to contact Kelly Jones at 913.831.3888 or kelly.jones@alz.org.

For meeting times and locations regarding the programs listed below, please consult the 2014-2015 Education Calendars for:
The Person with the Disease and Caregivers | Professionals

Finding Purpose in Advocacy
Use your experience to become a strong advocate for good public policy at a local, state, and federal level.

Legal Issues
This session explores the various legal concerns and needs that arise throughout the course of the disease. Issues include durable power of attorney, guardianship, conservatorship, patient rights, division of assets and living wills.

Let's Talk About Dementia
This program provides information on detection, causes and risk factors, stages of the disease, treatment, and helpful caregiver tips relating to communication, behaviors, and feelings. This program is offered in English and in Spanish.

So You Have Been Newly Diagnosed With Alzheimer's: The First Steps
An opportunity to discuss what early stage Alzheimer's disease means and management strategies.

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Resources

Library

The Main Chapter Office in Prairie Village features a library with books, brochures, videos and other resources about Alzheimer's for loan or purchase (click here for a list of available resources to purchase.) The library is open Monday through Friday from 8:30 a.m. to 5:00 p.m. Everyone is welcome to these resources in addition to the information available at the regional offices of the Heart of America Chapter. For more information about the available resources, call 913.831.3888.

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TrialMatch

TrialMatch is a free service that makes it easy for individuals with Alzheimer's, caregivers, families and physicians to locate clinical trials based on personal criteria (diagnosis, stage of disease) and location. This is an exciting time for Alzheimer's research. More than 100 research studies pertaining to Alzheimer's disease and related dementias are underway and volunteers for these studies are needed. TrialMatch lets you search these trials quickly and easily. The following link takes you to the national website. To return to the Heart of America Chapter website, click the "In My Community" tab at the top of the national website page. Learn More about TrialMatch.

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MedicAlert® +Safe Return®

In a move to significantly improve the safety of individuals with Alzheimer’s, the Alzheimer’s Association and the MedicAlert Foundation have created an alliance to bring you MedicAlert + Alzheimer’s Association Safe Return.

MedicAlert + Safe Return offers you the best of both worlds:

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Newsletter

Memory Matters, the Chapter newsletter, includes articles on caregiving strategies, research, public advocacy and the calendar of Chapter events. Visit our Newsletter Archive to download current or past newsletters in Adobe Acrobat format. Or, sign up to receive the newsletter in hard copy or email format by calling 913.831.3888.

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Multilingual Information

Alzheimer's disease and other kinds of dementia know no boundaries. Many individuals and families in ethnic and cultural minority groups are in need of solid information about Alzheimer's disease.
Access translated material

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Alzheimer's Association

Our vision is a world without Alzheimer's
Formed in 1980, the Alzheimer's Association is the world's leading voluntary health organization in Alzheimer's care, support and research.