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In My Community
For You, the Person With Alzheimer's
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  You may be in the midst of the journey of Alzheimer's, but we want you to know we are by your side every step of the way. The Heart of America Chapter has resources, educational programs, and services for those with memory loss, their families, and care partners. If you don't see the resources you need within the links below, please call us directly at 913.831.3888 or toll free at 1.800.272.3900. We are here to help.

 

 

Support

24-hour Information and Support

One-to-One Conversation

Early Stage Programs

Memories in the Making

Early Stage Support Groups

Message Boards

Early Stage Blog

Education

Project LEARN

Early Stage Volunteers

Exercising for the Brain

Legal Issues

Let's Talk About Memory Loss

So You Have Been Newly Diagnosed With Alzheimer's

Resources

Library

TrialMatch

MedicAlert + Safe Return

Newsletter

Multilingual

 

 

Support

24-Hour Information and Support

The Alzheimer's Association Information and Support line operates 24 hours a day, seven days a week, in 140 languages. Our staff is highly trained and knowledgeable about all aspects of Alzheimer’s disease. Call us if you have questions about:

  • Alzheimer’s disease or memory loss, medications and treatment options, brain health and care options

  • How the Association can help you

  • Services available in your community and referrals

You can also call us for emotional support –– as often as you need. We know that living with Alzheimer’s can be overwhelming at times. Remember, we are here for you –– all day, every day.

E-mail help

If you prefer, send us a message at jeanne.reeder@alz.org. We check the e-mail box daily and will respond to your inquiry within 48 hours.

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One-to-One Conversation

Our professional staff is dedicated to helping you navigate through the difficult decisions and uncertainties that individuals with Alzheimer's and their families face. Contact a Chapter office near you to arrange a one-to-one conversation between you and a Heart of America staff member. Staff will answer your questions about what early stage Alzheimer's disease means and help you with management strategies. Contact a Chapter office near you.

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Early Stage Programs

Early Stage Programs include Let's Talk, Project LEARN, Sharing Hope Empowerment Group and Expression Through Collage. Descriptions of each program follow:

LET'S TALK
Let's Talk is a Missouri service for people with early stage memory loss who would like to receive friendly calls from someone else who has mild memory loss. The program provides a supportive environment where people can talk freely about the effects of dementia on their lives. Call recipients must live in the state of Missouri. Contact Michelle Niedens at 913.831.3888 or michelle.niedens@alz.org for more information.

Project LEARN
Project LEARN (Listen, Educate, Adjust, Resolve, Navigate) is a program developed for individuals newly diagnosed in the early stage of Alzheimer's disease. An Alzheimer's Association Care Consultant will assist you and your family in developing a comprehensive, individualized, and self-directed care plan that includes disease management strategies for emotional and daily living needs. The Care Consultant can come to your home or he/she can meet you at a Heart of America Chapter office. To meet with a LEARN Care Consultant, please contact Karen Clond at 913.831.3888 or karen.clond@alz.org.

Project LEARN also offers a brief educational program for individuals, newly diagnosed in the early stage of Alzheimer's disease, and their families called "So You Have Been Newly Diagnosed with Alzheimer's." The two hour educational session will cover disease overview information as well as discuss issues around sharing diagnosis with others, support tips in managing short term memory issues, common questions in management and planning consideration. For more information on this program and other educational opportunities for individuals with mild memory loss contact Karen Clond at 913.831.3888 or karen.clond@alz.org.

Sharing Hope Empowerment Group
Sharing Hope empowerment Group meets in St. Joseph, Missouri on the last Tuesday of the month. This group of individuals are in the early stage of dementia and participate in projects that make a difference to others. Projects can be dementia-centered and might include advocacy efforts, dementia awareness efforts, and/or disease-education efforts. Other projects may address a community need that is unrelated to dementia. The goal of this group is to provide individuals with dementia the opportunity to increase meaningful and fulfilling experiences in their lives, while coping with Alzheimer's disease or related disorder. Members of this group also act as a support network for one another. If you are interested in participating in sharing Hope Empowerment Group contact Brenda Gregg at 816.364.4467 or brenda.gregg@alz.org.

Expressions Through Collage
Expressions Through collage meets in Warrensburg, Missouri on the last Friday of the month. This early stage group utilizes the art of collage to explore life experiences related to managing short term memory issues. Members of this group also act as a support network for one another. If you are interested in participating in Expressions Through collage, contact Brenda Gregg at 816.364.4467 or brenda.gregg@alz.org.

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Memories in the Making

Memories in the Making is an innovative art program that provides persons with Alzheimer's disease and other dementias with a means of creative expression through watercolor. Experienced volunteer artists work with community groups on a weekly basis. While this is not an early stage-specific group, individuals in the early stages do attend. No prior art experience is required. the following list includes Memories in the Making sites that are open to the public, however, space is limited. Please contact the numbers listed prior to attending.

Chillicothe, MO 64601
Every Wednesday
10 - 11:00 a.m.
Calvary Baptist church
206 Locust
Call Brenda Gregg at 816.364.4467

Kansas City, MO 64130
First Tuesday
10 - 11:15 a.m.
Mary L. Kelly Community Center (formerly known as the Graceland Elementary School)
2803 E. 51st Street
Call Trish Weatherspoon at 816.361.6604

Prairie Village, KS 66208
2nd and 4th Thursdays of each month
10 - 11:15 a.m.
Main Chapter Office
3846 W. 75th Street
Call Karen Clond at 913.831.3888

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Early Stage Support Groups

Early stage support groups meet in Prairie Village and Topeka. They provide information, discussion, and inspiration through an honest exchange of how individuals are coping and continuing on with good and productive lives. If you are considering joining the early stage support group, an orientation meeting prior to attendance is encouraged. The orientation meeting allows discussion about the group, gives opportunities to ask questions and ensures that the group is the right fit for the needs of the prospective participant. If you are interested in the Prairie Village group, contact Michelle Niedens at 913.831.3888 or michelle.niedens@alz.org. If you are interested in the Topeka group, contact Debbie Holroyd at 785.272.1844 or debbie.holroyd@alz.org

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Message Boards

The Alzheimer’s Association message boards and chat rooms provide an online community for persons with Alzheimer's, caregivers and care providers. Our message boards have thousands of registered members from around the United States and thousands more who refer to the stories and information that is available 24 hours a day.

Join the Alzheimer’s Association online community.

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Early Stage Blog

This blog provides a venue for individuals in the early stage of memory loss to share stories of how they live meaningful lives while coping with Alzheimer's disease and related disorders.

View the latest Early Stage Blog 

 

Education

Project LEARN

LEARN (Listen, Educate, Adjust, Resolve, Navigate) is an educational program for individuals, newly diagnosed in the early stage of Alzheimer's disease, and their families. The session will cover disease overview information as well as discuss issues around sharing diagnosis with others, support tips in managing short term memory issues, common questions in management and planning considerations. For more information, contact the Chapter office at 913.831.3888.

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Early Stage Volunteers

Early stage volunteers can share personal stories of how they live meaningful, complete lives while coping with Alzheimer's disease or related disorders. Additionally, early stage volunteers may choose to join the Chapter's advocacy efforts at a local and/or state level. Volunteers talk with schools, community groups, legislatures and the media regarding their experience with Alzheimer's disease in order to increase awareness and encourage early diagnosis. Anyone interested in being an early stage volunteer and being part of the Alzheimer's disease advocacy efforts is encouraged to contact Kelly Jones at 913.831.3888 or kelly.jones@alz.org.

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For meeting times and locations regarding the programs listed below, please consult the 2013-2014 Education Calendars for:
Professionals
Families
Individuals with the Disease

14th Annual Defining Hope
This conference occurs in November, Alzheimer's Disease Month. Please check back for more details as they become available.

Legal Issues
This session explores the various legal concerns and needs that arise throughout the course of the disease. Issues include durable power of attorney, guardianship, conservatorship, patient rights, division of assets and living wills.

So You Have Been Newly Diagnosed With Alzheimer's
An opportunity to discuss what early stage Alzheimer's disease means and management strategies.

Still Working
This program addresses areas and issues associated with younger onset dementia and employment, including who to tell, specific challenges based on type of work, possible accommodations and transitions out of the workplace.

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Resources

Library

The Main Chapter Office in Prairie Village features a library with books, brochures, videos and other resources about Alzheimer's for loan or purchase (click here for a list of available resources to purchase.) The library is open Monday through Friday from 8:30 a.m. to 5:00 p.m. Everyone is welcome to these resources in addition to the information available at the regional offices of the Heart of America Chapter. For more information about the available resources, call 913.831.3888. 

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TrialMatch

TrialMatch is a free service that makes it easy for individuals with Alzheimer's, caregivers, families and physicians to locate clinical trials based on personal criteria (diagnosis, stage of disease) and location. This is an exciting time for Alzheimer's research. More than 100 research studies pertaining to Alzheimer's disease and related dementias are underway and volunteers for these studies are needed. TrialMatch lets you search these trials quickly and easily. The following link takes you to the national website. To return to the Heart of America Chapter website, click the "In My Community" tab at the top of the national website page. Learn More about TrialMatch.

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MedicAlert® +Safe Return®

In a move to significantly improve the safety of individuals with Alzheimer’s, the Alzheimer’s Association and the MedicAlert Foundation have created an alliance to bring you MedicAlert + Alzheimer’s Association Safe Return.

MedicAlert + Safe Return offers you the best of both worlds:

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Newsletter

Memory Matters, the Chapter newsletter, includes articles on caregiving strategies, research, public advocacy and the calendar of Chapter events. Visit our Newsletter Archive  to download current or past newsletters in Adobe Acrobat format. Or, sign up to receive the newsletter in hard copy or email format by calling 913.831.3888.

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Multilingual Information

Alzheimer's disease and other kinds of dementia know no boundaries. Many individuals and families in ethnic and cultural minority groups are in need of solid information about Alzheimer's disease.
Access translated material

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Alzheimer's Association

Our vision is a world without Alzheimer's
Formed in 1980, the Alzheimer's Association is the world's leading voluntary health organization in Alzheimer's care, support and research.