|You may be in the midst of the journey of Alzheimer's, but we want you to know we are by your side every step of the way. The Heart of America Chapter has resources, educational programs, and services for those with memory loss, their families, and care partners. If you don't see the resources you need within the links below, please call us directly at 913.831.3888 or toll free at 1.800.272.3900. We are here to help.|
The Alzheimer's Association Information and Support line operates 24 hours a day, seven days a week, in 140 languages. Our staff is highly trained and knowledgeable about all aspects of Alzheimer’s disease. Call us if you have questions about:
Alzheimer’s disease or memory loss, medications and treatment options, brain health and care options
How the Association can help you
- Services available in your community and referrals
You can also call us for emotional support –– as often as you need. We know that living with Alzheimer’s can be overwhelming at times. Remember, we are here for you –– all day, every day.
If you prefer, send us a message at firstname.lastname@example.org. We check the e-mail box daily and will respond to your inquiry within 48 hours.
Our professional staff is dedicated to helping you navigate through the difficult decisions and uncertainties that individuals with Alzheimer's and their families face. Contact a Chapter office near you to arrange a one-to-one conversation between you and a Heart of America staff member. Staff will answer your questions about what early stage Alzheimer's disease means and help you with management strategies. Contact a Chapter office near you.
Early Stage Programs include Let's Talk, Project LEARN, Sharing Hope Empowerment Group and Expression Through Collage. Descriptions of each program follow:
LET'S TALKLet's Talk is a Missouri service for people with early stage memory loss who would like to receive friendly calls from someone else who has mild memory loss. The program provides a supportive environment where people can talk freely about the effects of dementia on their lives. Call recipients must live in the state of Missouri. Contact Michelle Niedens at 913.831.3888 or email@example.com for more information.
Project LEARN (Listen, Educate, Adjust, Resolve, Navigate) is a program developed for individuals newly diagnosed in the early stage of Alzheimer's disease. An Alzheimer's Association Care Consultant will assist you and your family in developing a comprehensive, individualized, and self-directed care plan that includes disease management strategies for emotional and daily living needs. The Care Consultant can come to your home or he/she can meet you at a Heart of America Chapter office. To meet with a LEARN Care Consultant, please contact Karen Clond at 913.831.3888 or firstname.lastname@example.org.
Project LEARN also offers a brief educational program for individuals, newly diagnosed in the early stage of Alzheimer's disease, and their families called "So You Have Been Newly Diagnosed with Alzheimer's." The two hour educational session will cover disease overview information as well as discuss issues around sharing diagnosis with others, support tips in managing short term memory issues, common questions in management and planning consideration. For more information on this program and other educational opportunities for individuals with mild memory loss contact Karen Clond at 913.831.3888 or email@example.com.
Sharing Hope Empowerment Group
Sharing Hope empowerment Group meets in St. Joseph, Missouri on the last Tuesday of the month. This group of individuals are in the early stage of dementia and participate in projects that make a difference to others. Projects can be dementia-centered and might include advocacy efforts, dementia awareness efforts, and/or disease-education efforts. Other projects may address a community need that is unrelated to dementia. The goal of this group is to provide individuals with dementia the opportunity to increase meaningful and fulfilling experiences in their lives, while coping with Alzheimer's disease or related disorder. Members of this group also act as a support network for one another. If you are interested in participating in sharing Hope Empowerment Group contact Brenda Gregg at 816.364.4467 or firstname.lastname@example.org.
Expressions Through Collage
Expressions Through collage meets in Warrensburg, Missouri on the last Friday of the month. This early stage group utilizes the art of collage to explore life experiences related to managing short term memory issues. Members of this group also act as a support network for one another. If you are interested in participating in Expressions Through collage, contact Brenda Gregg at 816.364.4467 or email@example.com.
Chillicothe, MO 64601
10 - 11:00 a.m.
Calvary Baptist church
Call Brenda Gregg at 816.364.4467
Kansas City, MO 64132
10 - 11:00 a.m.
Research Medical Center
Midtown Satellite Office
6420 Prospect, West Building
Call Clemme Rambo at 913.541.1258
Prairie Village, KS 66208
2nd and 4th Thursdays of each month
10 - 11:15 a.m.
Main Chapter Office
3846 W. 75th Street
Call Karen Clond at 913.831.3888
firstname.lastname@example.org. If you are interested in the Topeka group, contact Debbie Holroyd at 785.272.1844 or email@example.com
The Alzheimer’s Association message boards and chat rooms provide an online community for persons with Alzheimer's, caregivers and care providers. Our message boards have thousands of registered members from around the United States and thousands more who refer to the stories and information that is available 24 hours a day.
This blog provides a venue for individuals in the early stage of memory loss to share stories of how they live meaningful lives while coping with Alzheimer's disease and related disorders.
LEARN (Listen, Educate, Adjust, Resolve, Navigate) is an educational program for individuals, newly diagnosed in the early stage of Alzheimer's disease, and their families. The session will cover disease overview information as well as discuss issues around sharing diagnosis with others, support tips in managing short term memory issues, common questions in management and planning considerations. For more information, contact the Chapter office at 913.831.3888.
Early stage volunteers can share personal stories of how they live meaningful, complete lives while coping with Alzheimer's disease or related disorders. Additionally, early stage volunteers may choose to join the Chapter's advocacy efforts at a local and/or state level. Volunteers talk with schools, community groups, legislatures and the media regarding their experience with Alzheimer's disease in order to increase awareness and encourage early diagnosis. Anyone interested in being an early stage volunteer and being part of the Alzheimer's disease advocacy efforts is encouraged to contact Kelly Jones at 913.831.3888 or mailto:firstname.lastname@example.org.
For meeting times and locations regarding the programs listed below, please consult the 2012-2013 Education Calendar.
This session explores the various legal concerns and needs that arise throughout the course of the disease. Issues include durable power of attorney, guardianship, conservatorship, patient rights, division of assets and living wills.
So You Have Been Newly Diagnosed With Alzheimer's
An opportunity to discuss what early stage Alzheimer's disease means and management strategies.
The Main Chapter Office in Prairie Village features a library with books, brochures, videos and other resources about Alzheimer's for loan or purchase. The library is open Monday through Friday from 8:30 a.m. to 5:00 p.m. Everyone is welcome to these resources in addition to the information available at the regional offices of the Heart of America Chapter. View a list of material that can be purchased online.
TrialMatch is a free service that makes it easy for individuals with Alzheimer's, caregivers, families and physicians to locate clinical trials based on personal criteria (diagnosis, stage of disease) and location. This is an exciting time for Alzheimer's research. More than 100 research studies pertaining to Alzheimer's disease and related dementias are underway and volunteers for these studies are needed. TrialMatch lets you search these trials quickly and easily. The following link takes you to the national website. To return to the Heart of America Chapter website, click the "In My Community" tab at the top of the national website page. Learn More about TrialMatch.
In a move to significantly improve the safety of individuals with Alzheimer’s, the Alzheimer’s Association and the MedicAlert Foundation have created an alliance to bring you MedicAlert + Alzheimer’s Association Safe Return.
MedicAlert + Safe Return offers you the best of both worlds:
- Assistance when a person wanders or is lost
- Access to vital medical information in the time of need
Learn more about MedicAlert + Safe Return.
Memory Matters, the Chapter newsletter, includes articles on caregiving strategies, research, public advocacy and the calendar of Chapter events. Visit our Newsletter Archive to download current or past newsletters in Adobe Acrobat format. Or, sign up to receive the newsletter in hard copy or email format.
Alzheimer's disease and other kinds of dementia know no boundaries. Many individuals and families in ethnic and cultural minority groups are in need of solid information about Alzheimer's disease.
Access translated material