Favorite Web Links

Our Web visitors and callers are often looking for good Internet resources related to Alzheimer's disease. Below are Web links with descriptions highlighting practical resources you can print or download at no cost. The Web sites below contain more information than described here. Noodle around a bit and see what else you find.

Alzheimer's Association National Office
http://www.alz.org
You are currently at the Alzheimer's Association Web site. The home page is a portal to hundreds of pages of content on Alzheimer's disease and care. Over 140 publications on all aspects of the disease are free to download. Health care professionals and families can access the Alzheimer's Association Dementia Care Practice Recommendations for Assisted Living Residences and Nursing Homes which contain our official recommendations for dementia care. Visitors have access to information in other languages, including our bilingual Latinos and Alzheimer's portal and our Asian portal that includes resources in Chinese, Korean and Vietnamese. The popular Brain Tour explains how the brain works and how Alzheimer's affects it in 14 languages. The Alzheimer's Project takes a look at the disease through 4 online films in streaming video. TrialMatch™ helps families locate clinical trials based on personal criteria. Comfort Zone uses the Internet and a device to track the location of a person with Alzheimer's. The Alzheimer's Association Alzheimer's and Dementia Caregiver Center brings our caregiving information and tools together into one easy-to-navigate site featuring new and expanded information on early-, late- and middle-stage caregiving and other topics. You can also purchase educational products on our Web site. The Alzheimer's Association "Research Center" presents an extensive portfolio of information for finding the latest research from around the globe, how to volunteer for Alzheimer's clinical trials in your area, and more.

Alzheimer's Disease Education and Referral Center (ADEAR)
http://www.nia.nih.gov/Alzheimers
This Web site includes information for consumers on Alzheimer's disease from the National Institute on Aging. Notable is a collection of nearly 8,500 materials related to Alzheimer's disease. The database includes fact sheets, textbook chapters, journal articles, brochures, teaching manuals, directories, videos and other media, bibliographies, program descriptions, monographs, newsletters, and reports that are available from a wide variety of sources through AD Library on their home page. View a 4-minute captioned video showing the intricate mechanisms involved in the progression of Alzheimer's disease in the brain. Unraveling the Mystery, contains both basic and technical information on the scientific and social aspects of Alzheimer's. Resources are available in English and Spanish.

Alzheimer's Research Forum
http://www.alzforum.org/dis/abo/default.asp
Alzheimer's Research Forum is primarily geared toward researchers, but persons with Alzheimer's and families will also benefit. Many pages of web content can be printed or emailed. Detailed information on disease management, drug development, research, and news is available. Notable is the ability to find experts in the field of Alzheimer's research through their membership directory.

Alzheimer Store from Ageless Design
http://www.alzstore.com
This online store carries a variety of products for the person with Alzheimer's. Consumers should investigate each resource to determine individual preference.

By Us For Us© Guides
http://marep.uwaterloo.ca/products/bufu.html
PDF guides created through the Kenneth G. Murray Alzheimer Research and Education Program (MAREP) at the University of Waterloo by persons with dementia for persons with dementia. The guides are practical tools to help enhance well being and manage daily challenges.

California Guideline for Alzheimer's Disease Management, 2008
http://www.alz.org/socal/in_my_community_professionals.asp#
Clinical_guidelines
Find a summary document and the full report of specific guidelines for the management of Alzheimer's disease from early to end stage. The information presented is backed with scientific evidence and supported with opinions from experts.

ClinicalTrials.gov
http://clinicaltrials.gov
Identify regularly updated federally and privately funded clinical research with human volunteers. Locate information about a trial's purpose, who may participate, locations, phone numbers and whether a trial is still recruiting. Find information about participating in an Alzheimer's research study, see our alz.org section called Participating in Clinical Studies.

Family Caregiver Alliance (FCA)
http://www.caregiver.org
FCA's Publications section includes fact sheets, newsletters, research studies, reports, policy briefs and more available for anyone needing information on caregiving or developing programs and services for families. The National Center on Caregiving provides a state-by-state, online guide to identify programs and services nationwide for anyone involved in caregiving. Materials are available in Spanish and Chinese.

Four Pocket Films
http://www.agingresearch.org/content/article/detail/1653
Four brief films on Alzheimer's disease written by David Shenk, produced by Alliance Aging Channel and MetLife, and narrated by David Hyde Pierce can be watched online or purchased inexpensively. They are: What is Alzheimer's disease?; Alzheimer's disease: an urgent epidemic; Alzheimer's disease: race to the cure; and Alzheimer's disease: a message for newly diagnosed patients and their families.

14 Best Alzheimer's Videos of 2012
http://healthline.com/health-slideshow/best-videos-alzheimers
Healthline.com has assembled a collection of fourteen Alzheimer videos produced by agencies, film and television companies, corporations, authors and individuals that can be viewed online. These brief videos tell the stories of persons with Alzheimer's, their families, and the disease itself.

‘My Thinker’s Not Working’
http://www.aadmd.org/ntg
http://www.rrtcadd.org
A national strategy for enabling adults with intellectual disabilities affected by dementia to remain in their community and receive quality support. The plan, developed by the National Task Group on Intellectual Disabilities and Dementia Practices presents findings and recommendations on the impact of Alzheimer’s. It includes an overview of the population, challenges facing them, community services, education and training, financing, and possible solutions. It also provides an action plan for national, state, and local agencies and recommends a specific assessment tool for recognizing dementia in this special population.

National Library of Medicine – MedlinePlus
http://www.nlm.nih.gov/medlineplus
MedlinePlus is a goldmine of health information. It also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials and health news. Pages related to dementia and dementia care are Alzheimer's Disease, Dementia, Alzheimer's Caregivers and Memory. The Information is also available in Spanish: Enfermedad de Alzheimer, Demencia, Proveedores de atención al paciente con Alzheimer, Memoria. Additionally, MedlinePlus email updates deliver messages about new sites on MedlinePlus along with other notices. You can sign up to receive general emails covering all health topics, or you can sign up to receive emails about specific topics, like Alzheimer's disease.

NIH Senior Health – Alzheimer's Disease
http://nihseniorhealth.gov/index.html
If you are a computer savvy senior, or even if you're not, search the National Institutes of Health Web site on eating well as you get old, exercise for older adults, talking with your doctor, Alzheimer's disease , home care, residential care, caregiver support, safety issues, participating in clinical trials, and more. View the pages in different options like font size, contrast, and printer friendly versions.