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In My Community
From the President and CEO
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September 2014

Dear Friends:

There is one new case of dementia worldwide every four seconds.

September 2014 marks the third global World Alzheimer’s Month, an international campaign to raise awareness and challenge the stigma associated with this devastating disease. We need to raise our voices to educate the public about the most expensive disease in America and support those on this journey by breaking the formidable barriers of silence, fear, and stigma.

We must build bridges and break down barriers. And that is exactly what we are striving to do.

According to our sister organization Alzheimer's Disease International (ADI), an estimated 44 million people worldwide are living with dementia, a number projected to rise to over 135 million by 2050. ADI’s annual World Alzheimer Report will look at risk reduction and prevention of dementia, both topics of great interest and discussion at our recent Alzheimer’s Association International Conference, the world's leading forum on dementia research.

We are making a difference around the world.


The Alzheimer’s Association recognizes the need for global coordination and cooperation to fight this worldwide epidemic. We have taken a leadership role in international science efforts, including GAAIN; Worldwide ADNI; Global Biomarker Consortium; and the International Genomics of Alzheimer’s Project. We are at the table with health leaders from G7 governments to keep Alzheimer's disease at the top of the global health agenda and to make Alzheimer's and dementia research a global priority.

59% of people worldwide incorrectly believe that Alzheimer’s disease is a typical part of aging. There is nothing “typical” or “normal” about a brain disease.  We want to provide accurate and relevant information to people of all cultures.  In that spirit, we have translated our most popular and unique online resources and tools. International resources on our new site www.alz.org/global include:

• Country-specific Alzheimer's statistics, research plans and local support services.
• Educational content covering risk factors, symptoms, diagnosis and treatment.
• An overview of the Alzheimer's Association role in funding critical dementia research.
• An interactive brain tour.
• A call to action for the global community to join the cause.

Our 24/7 Helpline 800.272.3900 is available round the clock and offers translation services in more than 170 languages for those who need more detailed information and support.

We are making a difference in our community.

Connecting and learning is vital to those facing the daily challenges of Alzheimer’s. Our support groups and online community provide safe places for people to connect with others for sharing, questions, solutions, and support. We offer a variety of workshops both online and in communities throughout our region. We’re partnering once more with the Northern Virginia Dementia Care Consortium to present the 28th annual Caregivers Conference on November 11 in Alexandria, VA. Our friends at Holy Cross Hospital are presenting their 5th annual Dementia Conference on October 11 in Silver Spring, MD. I encourage you to take advantage of these opportunities for education and support. 

I’m often asked “What can I do to help?”  Following are four things you can do right now to make a difference:

Walk to End Alzheimer’s. I attended my first Walk in 2009 and was exposed to a community of love and hope in the face of this devastating disease. Walk offers a wonderful opportunity to come together with others who care deeply about this cause. The fellowship and encouragement I experienced at the Walk made a tremendous impact on my family’s journey with Alzheimer’s. And that is why we are here. I invite you to join with thousands in our region who are walking this fall in Bowie, La Plata, and Solomons, MD; Manassas, Reston, and Winchester, VA; and Washington, DC. Start or join a team today. Together, we can raise awareness and funds to enhance care and support and advance critical research.
Designate the Alzheimer’s Association in your workplace giving. Workplace giving campaigns are underway. Please designate the Alzheimer’s Association National Capital Area Chapter through United Way (#8056) or the Combined Federal Campaign (#49577), or the Alzheimer’s Association through Community Health Charities (#11234). Contact Elliott Gaskins at egaskins@alz.org or at 703.766.9024 to include the Alzheimer’s Association in your workplace giving fairs or presentations.

Sign up for Alzheimer’s Association TrialMatch®. Researchers tell us that recruiting and retaining clinical trial participants is now the greatest obstacle, other than funding, to developing the next generation of Alzheimer's treatments. Visit www.alz.org/trialmatch or call 800.272.3900 to learn more about this free service that connects individuals with Alzheimer's, caregivers, healthy volunteers and physicians with current studies.

Become an Alzheimer’s advocate. You can be a voice for those who cannot speak for themselves and need to be heard! Sign up to be an advocate and tell our elected officials that Alzheimer’s must be a priority on the national, state and local levels.

Thank you for your continued commitment to our mission!  Around the globe, across our country, and right here at home, your Alzheimer’s Association is leading the way to a world without Alzheimer’s.  We are proud of our efforts, and we are proud to share this journey with you.

Warm regards,

Susan Kudla Finn, PMP
President and CEO
Alzheimer’s Association National Capital Area Chapter


 

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Alzheimer's Association

Our vision is a world without Alzheimer's
Formed in 1980, the Alzheimer's Association is the world's leading voluntary health organization in Alzheimer's care, support and research.