Washington University in St Louis published a study in which they found that telling a person that they have Alzheimer’s may often be a relief, contrary to the fear many family members – and doctors – share.
Medical practice guidelines say doctors should tell their patients about the diagnosis, but we know, and studies confirm, that at least half do not.
The study, in the March issue of the Journal of the American Geriatrics Society, suggests that sharing the diagnosis with the patient not only did not add to depression or emotional burden, it offered a measure of relief.
“It’s not good news. No one is pleased to find out they have dementia,” said Brian Carpenter, co-investigator and associate professor of psychology at Washington University. “But some people find comfort in getting resolution to their anxiety and concerns, and knowing that people can help them.”
Knowing allows people to plan and to be more involved in decisions about their own future and the changing and improving options for current care.
It would also allow them to get involved in the movement that seeks a world without Alzheimer’s. With our April 16th Sacramento Rally, and at our May D.C. Public Policy Forum (see page 5) and our upcoming Memory Walks, people with an Alzheimer’s diagnosis will be front and center, telling policy makers they can’t wait for the next state legislative session or the next Congress.
Which brings me to good place to end: Memory Walk. It’s where the national movement to defeat Alzheimer’s meets. Form a team. Raise money. Raise hell. Remember mom and dad. Walk shoulder-to-shoulder with families and professionals who share your passion. See you there.
Wm H. Fisher, william.fisher@alz.org
