Advocacy • Associations in the Field of Aging • Chinese Language Resources • Disease Specific Organizations • General Interest and Online Resources • Government Agencies • Medical and Research
Advocacy
California Advocates for Nursing Home Reform (CANHR)
Offers information and advocacy for nursing home residents and their families and friends. Search for Skilled Nursing Facilities and any documented licensing complaints.
California Council of the Alzheimer's Association
Offers information and access to bills regarding legislative priorities at the statewide level. These are all issues that reflect primary interest to the Alzheimer's Association network throughout the state of California.
Families USA Foundation
National non-profit organization focused on affordable long term care.
Health Insurance Counseling and Advocacy Program (HICAP)
Get Free help from HICAP offices throughout California with Medicare claims, appeals, denials or delays of service or treatment. You can receive unbiased advice about HMOs, Medicare supplements, long term care insurance, and much more.
Lumetra
Lumetra is a non-profit organization working to ensure quality healthcare for Medicare members. Lumetra is the designated Quality Improvement Organization in California, focusing on case review and national quality initiatives.
Associations in the Field of Aging
AARP Webplace: Caregiving
Extensive web resource on aging issues from the American Association of Retired Persons.
American Hospice Foundation
National organization providing information on accessing hospice, related workshops, publications and information.
American Society on Aging
Professional membership association in the field of aging.
Gerontological Society of America
Professional membership association in the field of aging.
Chinese Language Resources
The following web sites are recommended and can be viewed using browsers with traditional Chinese (Big 5).
Chinese Health Resource Center
Health Education Materials in Chinese and English
Dementia articles published by Dr. Hsiu-Chih Liu
Disease Specific Organizations
Alzheimer’s Disease and Downs Syndrome
Detailed and thorough article on diagnosis, treatment, stages and management of AD & DS, located on emedine site.
Creutzfelt-Jakob Disease (CJD)
Informative site regarding the diagnosis, treatment and other issues of CJD.
Frontotemporal Dementia
Comprehensive site sponsored by the Association for Frontotemporal Dementia (AFTD).
Huntington’s Disease
Informative website sponsored by Huntington’s Disease Society of America.
Lewy Body Dementia Association
Caregiver-based site providing information on LBD, including caregivers' e-mail group.
LewyNet
Sponsored by the University of Notingham, this site provides scientific based information on Lewy Body Dementia.
Multi-Infarct Directory
Information on Multi-Infarct Dementia (MID), also known as Vascular Dementia.
National Alzheimer's Association
Our national office web site, filled with useful information and resources concerning Alzheimer's disease.
Parkinson’s Disease: The National Parkinson’s Foundation, Inc
Wealth of information on Parkinson’s issues and local resource search.
Pick’s Disease Support Group
On-line support group and information on Pick’s disease and other Frontotemporal Dementia’s.
General Interest and Online Resources
Alameda County Network of Care
Extensive information on resources in Alameda County, Ca, caregiving/personal information, legislation and more.
Alzheimer's Caregiver Support Online – Linea de Apoyo para Cuidadores de Personas con Alzheimer
AlzOnline provides education and support to caregivers of elders with Alzheimer's. Excellent Spanish translation.
Alzheimer’s Store
The Alzheimer's Store is dedicated to providing unique products and information for those caring for someone with Alzheimer's disease
BenefitsCheckUpRX
Fast, free, confidential service for elders to determine pharmaceutical benefits. Sponsored by the non-profit Access to Benefits Coalition.
California Assisted Living Online
Site offers a search function by county of Residential Care Homes for the Elderly (RCFE’s), also known as Assisted Living Facilities.
California Nusing Home Search
Consumer-friendly comparative information for California's nursing homes sponsored by California HealthCare Foundation.
Caregiver Network
Canadian-based information resource for caregivers
Dementia Adovcacy and Support Network (DASN)
Provides on-line support groups for people with dementia, an online newsletter, advocacy information, and links to other sites (local and abroad). DASN is a non-profit organization created and maintained by people with dementia due to Alzheimer's disease or a related disorder.
DestinationRx
DestinationRx is a privately-held company managed by a team of Healthcare and Internet professionals with the goal of helping consumers lower their cost of prescription medications.
Eldercare Online
Offers information, caregiver on-line support groups and a world wide chat guide which contains links to other websites that offer chat support groups. Unique features: 1. Offers a substantial teen resource center that offers information, education and an on-line e-mail message group. 2. The Eldercare Forum contains an early onset dementia specific discussion group for caregivers.
Elder Web
Information on eldercare and long term care with general aging related articles.
Ethnic Elders Care
Resource for caregivers and health professionals of ethnic elders.
Family Caregiver Alliance
Comprehensive web site offered by the California Caregiver Resource Center serving the San Francisco Bay Area, which services brain injured adults and their families.
Helping Patients Obtain Free/Low Cost Prescriptions
Patients without prescription drug coverage access user friendly information about patient assistance prescription programs.
National Association of Professional Geriatric Care Managers
Offers national search for local case managers. Case managers specialize in assisting older people and their families in meeting their long-term care arrangements. Site lists the variety of services provided.
National Council on Aging: Benefits Check Up
Site offers ways to search for cost saving programs, including prescription medications.
Nevada Eldercare
Caregiver Resources and Information available in Nevada.
Older Adult and Family Center
Multilingual and multicultural staff offers a free program to help caregivers develop skills to cope with the challenges associated with caregiving. Offered throughout the San Francisco Bay Area. Services provided in English, Spanish, Cantonese, and Mandarin.
US Legal Forms
Site offers variety of legal forms to download for purchase. Included are Power of Attorney and Health Care forms for every state.
Government Agencies
Administration on Aging
Site contains aging news, Older American Act programs, statistical information on older adults.
Centers for Medicare and Medicaid Services
Federal agency that administers medicare, medicaid (medi-cal in california) and child health insurance programs.
Medicare
The official US government site for medicare information. Information on medicare, medigap, health plans, prescription drugs and a search function for nursing homes.
National Institutes of Health
Offers information on current disease research projects and links to health related sites.
Nevada Eldercare
State of Nevada Website, Division of Aging Services
Social Security Administration
Official Government site for the Social Security Administration.
Medical and Research
Alzheimer's Disease Center: Davis
University of California at Davis site, with information on their clinical diagnostic services, research, education and information on Alzheimer's disease.
Alzheimer's Disease Center: Fresno
University of California at Fresno site, with information on their clinical diagnostic services, research, education and information on Alzheimer's disease.
Alzheimer's Disease Center: Stanford/VA
Stanford/VA research site, with information on their clinical diagnostic services, research, education and information on Alzheimer's Disease.
Alzheimer's Disease Center: San Francisco
UCSF research site, with information on their clinical diagnostic services, research, education and information on Alzheimer's Disease.
Alzheimer's Disease Cooperative Study
Collaboration between the NIA and California University of San Diego to advance research for drug development for treating Alzheimer's Disease.
Alzheimer's Disease Education and Referral (ADEAR) Center
The National Institute on Aging's report on the latest research. Reliable and up-to-date.
Alzheimer's Research Forum
A scientific knowledge base on Alzheimer disease, with research news, expert commentaries, and databases for peer-reviewed articles, drugs, research reagents, grants, jobs, conferences, and more.
California Pacific Medical Center
The Memory Clinic provides a variety of services to assist in early diagnosis of memory problems, as well as the coordination of medical and community management for individuals with severe memory loss.
Clinical Trials: Alzheimers
National Institute of Health clinical trial listing
Clinical Trials: Alzheimer's
Clinical Trials Listing Service
Genetics study
Information on NIA genetics study for Alzheimer's disease families.
Journal of the American Medical Association
Entry site for JAMA, a journal publishing original, peer-reviewed articles on a wide range of medical topics.
National Institute of Neurological Disorders and Stroke
Fact sheets on stroke-related and other dementias; information on current studies.
National Library of Medicine
Comprehensive site searchable for medical information on Alzheimer's and other dementias.
New England Journal of Medicine
A leading medical journal with articles on dementia indexed and abstracted.
Research Center- The Nun Study
Background and regular updates on the longitudinal study of aging and Alzheimer's disease.
Rush Alzheimer's Disease Center
Site provides clinical trails and research information, along with on-line tri-annual newsletter.
