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Palliative Care
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The Alzheimer’s Association, New York City Chapter's Palliative Care for Advanced Dementia: Training and Implementation, addresses the need for improving the quality-of-life and care for residents diagnosed with advanced dementia who live in nursing homes, through a program that generates the special adaptations needed to make palliative care more effective for persons with advanced dementia and their families.

We are addressing this problem through a pilot project focused on the implementation of improved practices on the pilot units in our three partner nursing homes, and the organizational adaptations needed to implement and sustain these practices throughout each of the partner homes.  Our program is based on the practice of a comfort-focused care approach, rather than the more traditional medical model of care, and is based on a ground-breaking program developed by Beatitudes Campus (the NYC Chapter’s consulting partner) and their partner, Hospice of the Valley, in Phoenix, Arizona.  They have invested considerable research and training into expanding knowledge and practice in the area of institutionally-based care for people with late-stage dementia.  The project aims to adapt their care model to urban, culturally diverse settings, and will be the first of its kind in NYC.  Included in this effort is an extensive evaluation and cost-study.

For this project we are working with three nursing homes and the three hospices with whom they contract, to develop model residential care programs in palliative care for people with late stage dementia.  Our partners are Cobble Hill Health Center, Inc., Brooklyn; Isabella Geriatric Center, NYC; Jewish Home Lifecare, NYC; VNSNY Hospice & Palliative Care, Inc.; Metropolitan Jewish Hospice & Palliative Care, NYC; and Calvary Hospice.

For more information about this project, contact: Ann Wyatt at 646-744-2963 or AWyatt@alznyc.org.


For more information about palliative care for people with advanced dementia, here are some links:

News resource:
The Sense of An Ending: New ways of care for people with dementia
(The New Yorker)
An article featuring the Alzheimers Association, NYC Chapter

Websites
Encouraging Comfort Care: A Guide for Families of People with Dementia Living in Care Facilities, developed by the Greater Illinois Chapter of the Alzheimer’s Association. Available in English and Spanish
ADvancing Care, a newsletter for people who work in nursing homes which shares ideas for improving the care of people with advanced dementia. Available for free online.
Care ADvocate, a newsletter for the family and friends of those with dementia who live in nursing homes or other residential care settings. Available for free online.

For Professionals:
Center for the Advancement of Palliative Care, an organization which works with providers to promote excellence in palliative care, www.capc.org.

For Family members, persons with dementia:
www.getpalliativecare.org

   
News Articles

Giving Alzheimer’s Patients Their Way, Even Chocolate
Margaret Nance was, to put it mildly, a difficult case. Agitated, combative, often reluctant to eat, she would hit staff members and fellow residents at nursing homes, several of which kicked her out. But when Beatitudes nursing home agreed to an urgent plea to accept her, all that changed.
Read more

 

 

 

 

 


 

Alzheimer's Association

Our vision is a world without Alzheimer's
Formed in 1980, the Alzheimer's Association is the world's leading voluntary health organization in Alzheimer's care, support and research.