To better understand the impact of Alzheimer’s disease on New York City residents, the Office of the
Manhattan Borough President Scott M. Stringer and the Alzheimer’s Association, New York City Chapter
surveyed 496 city residents who serve as caregivers for friends or family members with Alzheimer’s disease and
related dementias in New York City.
The survey results were both alarming and eye-opening:
- Caregivers spend significant amounts of time providing unpaid care to their friends or family
member each week. Over 40 percent of respondents are spending as many as 40 or more hours each
week providing care for their family member or friend. For many respondents, caregiving duties have
interrupted their ability to hold a job or changed the nature of the work they are able to do.
- The majority of respondents missed work during the last year to provide care for their family
members or friends. Two-thirds of survey respondents indicated that they had missed at least one day of
work in the last year to care for a relative or friend with Alzheimer’s disease or related dementia. Over 17
percent had missed a staggering total of 21 or more days of work – equivalent to over four, full-time work
- The majority of respondents have encountered barriers accessing some of the services required
for their relatives or friends. These barriers included a lack of insurance or insufficient insurance, the
high cost of care, lack of local or appropriate services, unreliable transportation options, and daunting
- Respondents are deeply dissatisfied with the level of services and support available for people with
Alzheimer’s disease in New York City. Half of survey respondents described the level of services and
support available for people with Alzheimer’s disease in New York City negatively, with over 35 percent
describing them as “less than satisfactory” and almost 15 percent describing them as “poor.”
- The overwhelming majority of respondents – 95.5 percent – believe there needs to be a citywide plan
to address Alzheimer’s disease in New York City.
The data suggests that despite the wide array of programs available in New York City, neither people with
Alzheimer’s disease nor their caregivers are receiving the services and support they need. The responses indicate
insufficient services, poor quality care in residential settings and home health agencies, massive financial
burdens on caregivers, and damaging emotional, health and professional effects to caregivers and their families.
Providing a high level of support for people with Alzheimer’s disease and their caregivers – regardless of their
economic position – will require changes at the municipal, state and national level.
To read the entire report, please download PDF here.
This Report will prepare New York City for the future, sending a message of hope for all New Yorkers who need our help.
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