Research Studies

Links

The following are websites you may like to visit while researching
Alzheimer's disease and related disorders. Please contact us if you
would like to be added to our links page.

Resources

National Alzheimer's Association
ADEAR - Alzheimer's Disease Education and Referral Center
Alzheimer's Disease Program
Alzheimer Research Forum
American Society on Aging
Dementia Web
National Library on Medicine
University of Ohio Alzheimer Center
California Department on Aging

Books

Love Is Ageless: Stories About Alzheimer's Disease (edited by Jesicca Bryan)
Link to Google Book search
Elder Rage (Jacqueline Marcell)
http://www.elderrage.com/

Care Facilities

http://www.nursinghomeguide.org
http://www.calnhs.org

California Advocates for Nursing Home Reform (CANHR)

A non-profit, consumer rights advocacy organization dedicated to senior issues and focusing on long-term care for residents of California.
http://canhr.org

Dementia Care Practice

The Dementia Care Practice Recommendations for Assisted Living Residences and Nursing Homes are the foundation of the Alzheimer's Association Campaign for Quality Residental Care.

The goal of the recommendations is to help assisted living residences and nursing homes nationwide provide a consistent, high quality level of care for individuals with dementia. The recommendations are based on the latest evidence in dementia care research and the experience of care experts. They are supported by 24 leading organizations representing residental care providers, professionals, care staff and consumers.
http://www.alzoc.org/pdfs/Dementia_Care_Practice_Recommendations.pdf (printable booklet)

Elder Law Attorneys

National Academy of Elder Law Attorneys

Games/Activities

Elder Games (United Seniors Health Cooperative)
http://www.unitedseniorshealth.org/html/pubs_eldergames.html
Mental Stimulation Kits http://www.vetrol.com/kits/kits.html
www.alzstore.com
Meaningful Life Skills or Emotions Plus
www.wellness-resources.com
www.proactiveeldercare.com

Government/Healthcare

California’s Discount Drug Program for Medicare beneficiaries
www.aging.ca.gov
Center for Medicare Advocacy http://www.medicareadvocacy.org
Department of Managed Health Care (California) 1-888-HMO-2219
or (www.hmohelp.ca.gov)
Health Insurance Counseling and Advocacy Program (HICAP) 1-800-434-0222 or (www.cahealthadvocates.org)
Medicare Health Plan: Comparison of cost, coverage & benefits
Medicare (official website: www.medicare.gov)
Medicare Rights Center (www.medicarerights.org)

Long Term Care Insurance Rating Services

A. M. Best Company www.ambest.com
Moody's Investor Service, Inc. www.moodys.com
Standard & Poor's Insurance Rating Service www.standardandpoors.com

Medicare

See government/healthcare

Medication/Prescription/Benefits

www.together-rx.com - prescription savings program

On-line Publications

New LifeStyles
Caregiving Magazine

Orange County Resources

Orange Caregiver Resource Center
Council on Aging including:
Long Term Care Ombudsman Program
Financial Abuse Specialist Team (F.A.S.T.)
Health Insurance Advocacy Program for Seniors (H.I.C.A.P.)
Health & Aging Services in Yorba Linda www.healthandagingservices.com
Linkages Case Management Program
Meals on Wheels
Office on Aging (formerly Area Agency on Aging)
South County Senior Services http://www.southcountyseniors.org

Related Diseases

CJD Voice http://members.aol.com/larmstr853/cjdvoice/cjdvoice.htm
NIH Website http://www.ninds.nih.gov/health_and_medical/disorders/cjd.htm
www.emedicine.com/NEURO/topic311.htm

Pick’s Disease
http://www.pdsg.org.uk
http://www.ninds.nih.gov/disorders/picks/picks.htm
http://www.emedicine.com/NEURO/topic311.htm
http://www.zarcom.com/users/alzheimers/odem/pk.1html
Family caregiver alliance http://www.caregiver.org
http://www.ftd-picks.org/

Primary Progressive Aphasia (PPA)
http://www.brain.northwestern.edu
http://www.aphasia.org

Research/Drug Studies

Alzheimer's Disease International
Alzheimer's Disease Research Center, University of California, San Diego (ADRC UCSD)
American Academy of Neurology
Clinical Trials
Manual of Geriatrics
Mayo Clinic
Novartis Foundation for Gerontological Research
The Nun Study
University of California Irvine Alzheimer’s Disease Clinical Trials and Research
University of California - Institute for Brain Aging & Dementia Clinical Trials
Vascular Dementia Trials

Websites in Spanish (en espanol)

Medline Plus - www.nlm.nih.gov/medlineplus/alzheimersdisease.html
American Association for Geriatric Psychiatry - www.aagpgpa.org/p_c/
AARP - www.segundajuventud.org/spanish/
Administration on Aging - http://www.aoa.gov
UCI Medical Center - www.ucihealth.com.seniors (click:Espanol)
www.mediguide.com
University of Utah, Health Sciences Center - www.uuhsc.utah.edu/healthinfo/spanish/Neuro/alzheim.htm