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Featured Team: The FTD Support Group

Team Captain: Jodee Kalmen
I am passionate about shedding light on Frontotemporal Dementia and all of its characteristics. I thought I was going mad in my relationship with my husband. Everyone thought he was fine, just so sweet, and could not understand why I was continually out of sorts with his behavior.
His disguise was his niceness. The disease hid behind his niceness. His lack of emotions was not only frustrating but unreal. Never having an opinion about raising our boys was lonesome. I could not understand how he could go into work each day and conduct business and then come home and completely turn off.
All throughout this journey he thought he was fine which made it even more frustrating. After much strife, battles, separation, therapy and horrible words spoken I now know why.
I know there are others out there that are going through what I went through. It is those people that bring me to forming this team, raising money and telling my story. Nobody should have to go through what I went through. If only I knew more.
Please help me raise the necessary funds to find a solution to this cunning and devastating disease. Please join my team either by donating or walking or both. The Alzheimer's Association has been instrumental in helping me get through this ordeal.
Side note: My husband went through a lot also; the loss of a job that he dearly loved, his golf game, friends, his walking ability and his independence. He now resides in a beautiful Assisted Living residential home (Granny's Place). He is under the care of hospice. His "niceness" is still with him. Thank God for that.
Jodee shares her intensely personal story with others to spare them the heartache she and her sons have endured these many years as they gradually have lost the husband and father they once knew. If you are dealing with inexplicable personality changes in a loved one, please call our 24/7 Helpline at 800.272.3900. There is no shame in doing what you can to help someone you love.
To learn more about Jodee’s story or about our Early Memory Loss Program, call Jean at 949.757.3758. |