Website Resources for People with Alzheimer's Disease
The Association now has a new resource to offer early-stage constituents with the recent launch of the new I have Alzheimer's web pages. Developed with input from people living in the early stage of Alzheimer’s or other dementia the web pages provide valuable resources, personal insights, and helps answer many questions a diagnosis of Alzheimer’s creates including:
- How do others respond to their diagnosis?
- How do I live day to day?
- How do I plan for my future?
- What should I expect as the disease progresses?
- What resources are available through the Alzheimer's Association?
In January 2006, the Alzheimer's Association launched an Early-Stage Initiative to gather information about current early-stage programs and to explore the best ways to provide services to the emerging early-stage population. Recognizing the changing demographics of our aging population and science advancements on the horizon, the Association sought to create an engaging and positive experience for early-stage constituents upon first contact with the Association.
In 2008, in support of this initiative, the Alzheimer's Association launched the Early-Stage Memory Loss Series, a seven-week education and support program designed to engage both the person with the disease and his or her care partner. This program also served as an opportunity to explore potential early-stage activities that would best meet the needs of the community. These efforts resulted in the developmetn of the following programs:
- Memories in the Making® – A water-color painting program for people with Alzheimer's, adopted in spring of 2012 and formatted to meet the needs of people in the earlystages of Alzheimer's who live in a community setting.
- Sing Here Now – A choir for people with Alzheimer's, formed in 2011 in collaboration with Earthtones Music Therapy Services in Portland.
These programs are developed to engage individuals in the early stages of Alzheimer's disease or related disorders and their care partners. "Early-stage" refers to people, irrespective of age, who are diagnosed with Alzheimer's disease or related disorders and are in the beginning stages of the disease. In this stage, they retain the ability to participate in daily activities and a give-and-take dialogue. This includes those persons with "younger-onset" that develop dementia under aeg 65 and are still in the early stages of the disease.
These programs provide a natural, social atmosphere allowing individuals in the early stages of the diagnosis, as well as their family members or care partners, to share in the development of a social community. The goal of the Early Stage Initiative is to elevate the voices of those living with early-stage Alzheimer's, to change public perceptions about who has the disease, and what it means to be living with Alzheimer's and related dementias.
Early-Stage Support Groups
Support groups are available for individuals in the early stages and their care partners. Click here for more information.