In February 2011the Alzheimer's Association, West Virginia Chapter and key stakeholders from around the state, began the process of developing a state plan to address the present and future impacts of Alzheimer's disease and related dementias in West Virginia. More than 50 individuals began working on a variety of workgroups and ultimately produced a final plan, including key recommendations. The three workgroups were: Care Systems, Education and Training, and Research and Quality Improvement. This plan is a critical first step in addressing the growing need for increased care, support and research to help the more than 47,000 individuals in West Virginia and their 100,000 caregivers facing Alzhiemer's disease.
On Sunday, January 8. 2012 the joint Senate & House of Delegates Senior's Committee adopted MAP and passed a resolution in support of MAP's recommendations.
Read the Resolution!
- Increase the case mix classification for nursing facility residents with Alzheimer's disease.
- Expand the availability of quality, affordable home and community-based services for individuals with Alzheimer's disease and their caregivers by increasing funding for the state-funded Family Alzheimer's In-Home Respite (FAIR) and Lighthouse programs to serve more families statewide and to alleviate waiting lists that frequently exist for both programs.
- Explore the addition of an Alzheimer's Disease Waiver to the sspectrum of Medicaid 1915(c) Home and Community-Base Waiver programs offered in West Virginia.
- Promulgate regulations for licensure of adult day health services and add those services as a reimbursable service in a new Alzheimer's Disease Medicaid Waiver program.
- Secure state funding for the Alzheimer's Association's 24/7 Helpline.
- Create a tate-sponsored option for long-term care insurance.
- Implement "Alzheimer-informed" facility policies and procedures to create a system of "Universal Observation" to identify people with Alzheimer's disease in healthcare settings so that people receive optimal inpatient care, as well as ambulatory medical services.
- Develop a non-threatening, non-discriminatory system to identify people with Alzheimer's disease in acute care settings in order to improve safety and quality of care.
- Ensure that program guidelines for the Bureau of Medical Services' chronic disease health homes state plan amendment reflect the unique needs of people with Alzheimer's disease.
Education and Training
- Establish a formal network of providers of Alzheimer's training in West Virginia, an "Alzheimer's Education Council," to increase the availability of quality continuing education and other training on Alzheimer's disease and serve as consultants on the development of competency-based models of Alzheimer training for all levels of providers and caregivers.
- Establish a state-funded Alzheimer's disease training program fr family and lay caregrivers to be offered statewide.
- Develop and mandate the inclusion of competency-based Alzheimer's disease training for direct care workers in long-term care facilities, acute care settings, and community-based programs.
- Study the effectiveness to date of the West Virginia Silver Alert program, make recommendations for the future of the program, and determine the Alzheimer eduation and training needs of first responders.
- Devise incentives and increase exposure to geriatrics during medical school and residency in order to recruit more physicians and mid-level providers into practicing geriatrics. Ensure adequate reimbursement exists for the services they provide.
Research and Quality Improvement
- Foster a multi-pronged approach to research into the causes, diagnosis, treatment, care and cure of Alzheimer's disease.
- Support the West Virginia Alzheimer's Disease Registery to improve the collection of actual Alzheimer's incidence information.
- Require that quality of care research be conducted on all state-funded services that target people with Alzheimer's and their caregivers.
- Conduct an evidence-based review of transitions of care models for people with Alzheimer's disease, and then, pilot these best practice approachesin West Virginia.
- Maximize use of Behavioral Risk Factor Surveillance System survey to collct data on the prevalence and impact of Alzheimer's disease on people with the disease and their caregivers.
- Explore the creation of an independant Alzheimer's disease-focused social indicator survey.
How You Can Help MAP
Joining the Alzheimer's Association's network of advocates is a critical ways you can support the many individuals and families facing Alzheimer's disease, both in our state and across the country. If you would like more information about how you can get involved with advocacy efforts contact, Laurel Kirksey at 304.343.2727 or firstname.lastname@example.org.
Follow this link to view the Alzheimer's Association, West Virginia Chapter's 2012 public policy platform.