I Have Alzheimer's Diseasealz.org | IHaveAlz
Learning as much as you can about your diagnosis is the first step towards empowering yourself to take control of your life and make decisions that will help you live well with Alzheimer's for as long as possible.
- Benefits of learning more about Alzheimer's
- Learn at your own pace
- Alzheimer's Association resources
Benefits of learning more about Alzheimer's
It is normal to be hesitant or resistant to learn how the disease will progress and impact your life. But there are benefits:
- You may experience a stronger connection to your emotions and identity.
- Knowledge about Alzheimer's can provide you the confidence to make important decisions about how you choose to live your life and plan for your future.
Educating yourself about Alzheimer's also may help you to:
- Come to terms with your diagnosis
- Be an active participant in making your own legal, financial and long-term care plans
- Re-evaluate your priorities; set goals you would like to accomplish while you are still able
- Share your diagnosis with others
- Educate others about the disease and reduce stigma
- Discuss available treatments and medications with your doctor
- Recognize the symptoms of the disease so you can adapt to these changes and develop coping strategies
- Build a care team that understands your current and future needs and wishes
- Make a decision about participating in clinical trials
- Take a more active role in managing your disease
There is an abundance of information available online and it may have been one of the first places you turned to after learning your diagnosis. To help ensure you get the most credible, reliable and objective information, use well-respected websites.
Learn at your own pace back to top
As you begin learning about your diagnosis, there may be information that will be difficult for you to deal with — and that's OK. Learn about the disease and how it will impact you and your family at your own pace. Set realistic expectations about the information you are able to process. Then come back to this site to learn more as often as you need.
Some important questions to ask yourself as you prepare to learn about the disease are:
- What are the most important questions about the disease that I need answered right now?
- How much information am I able to cope with at this time?
- How much do I want to learn about the disease right now?
- What resources are available to help me learn about my diagnosis?
- Are there resources available to me in the community where I live? Start your search by using our Community Resource Finder, a free online tool that allows you to easily locate Alzheimer’s and dementia resources, programs and services in your area.
Alzheimer's Association resources back to top
- Visit our website alz.org. You may want to start with these pages:
What Is Alzheimer's?
An overview of disease basics, such as symptoms and the role of plaques and tangles (hallmarks of the disease) in the brain
Stages of Alzheimer's
The stages provide a general idea of how your abilities will change. Your doctor or other clinicians may use this framework during medical visits.
Our interactive Brain Tour explains how the brain works and how Alzheimer's affects it.
- Call our 24/7 Helpline at 800.272.3900. Professionals are ready to answer your questions.
- Use our Virtual Library to ask our librarian questions; search and borrow materials, articles and books; and explore reading lists.
- Participate in support groups designed specifically for individuals in the early stage.
- Take our free, online workshop Living with Alzheimer's for People with Alzheimer's. It covers what you need to know, plan and do.
> Take the workshop online
> Find a workshop in your area
- Use our Community Resource Finder to search and learn about local services, such as care and living options.