First of all, I'd like to congratulate and thank you for your Web site on Alzheimer's. I am writing to you from Chile, South America.
During the last 10 years, I have had the opportunity to get to know Alzheimer's; my granny is living with it. As a family, we have organized her care, taking on different shifts and tasks. One of granny's daughters is in charge of her as the primary caregiver.
The experience of participating, taking care and living for a long time with granny made me think of writing about all this. During this trip, granny and I have found new ways of communicating. When language started leaving us, gestures became more important, enjoying them as never before; we have always been very close.
In Chile, people don't know very much about the disease, so I started a project. My way to talk about the Alzheimer's experience was through poetry. I write it in my language, Spanish. I want to share the surprises, tenderness, anger, silence, fear, dance, reality and feelings between my granny and I, the Chilean culture and sometimes the family.
Alzheimer's, through my granny, has shown me the importance of love and that being fragile is also being strong.