Monday, April 22 |
10 a.m. - Noon |
Welcome Reception for Advocates Living with Alzheimer's or Other Dementias
The Alzheimer's Association National Early-Stage Advisory Group invites advocates living with Alzheimer's or other dementias to attend this two-part educational seminar and networking event. The first hour will include a presentation from a representative of the Alzheimer's Association Medical and Scientific Relations division to discuss the latest in Alzheimer's research and treatments. The second half will provide an opportunity to meet and network with other advocates living in the early stage of the disease in an informal setting. National Early-Stage Advisors will be on hand to share their stories and inspire you as you prepare to join the fight on Capitol Hill. |
4-6 p.m. |
Winning the Fight: Celebrating 25 Years of Alzheimer's Advocacy
For 25 years, Alzheimer's advocates have lifted their voices for millions of Americans in Washington, D.C., and achieved real policy change. In our opening session, we'll pay tribute to the advocates who have come before us, hear about state-level advocacy victories from across the country and rally attendees to continue the fight in making Alzheimer's a national priority.
David Hyde Pierce, Honorary Chair, 2013 Alzheimer's Association Advocacy Forum |
6:20-7:30 p.m. |
A Deeper Look: Insights from Experts
Take advantage of the opportunity to go a little deeper on some of the issues we care about most — and the key pillars of the National Alzheimer's Plan. These sessions will provide you with interesting insights about our work to overcome Alzheimer's.
Note: These informal updates are optional, and the information will not be needed to effectively advocate for our priorities on Capitol Hill or beyond. All sessions will be recorded and made available after the Forum.
Session #1
Expanding Awareness: What do "average" Americans think about Alzheimer's? Is it a priority to them, as it is for us as advocates? What is being done to increase public awareness and engagement?
Session #2
Effective Treatment: What we've learned from recent treatment trials, and where the science is heading. Will include a preview of the Alzheimer's Association International Conference®' 2013 to be held July 13-18 in Boston.
Session #3
Enhancing Care: What are we learning about how to provide better quality and more effective care to those with Alzheimer's, and how might the National Alzheimer's Plan push this progress forward?
Session #4
Improving Support: One of the largest challenges — and opportunities — in our efforts against Alzheimer's is to provide those with dementia and their caregivers the support they need to continue to live their lives to the fullest extent possible. Learn what's being done to provide the support that individuals and families need today. |
7:45-9 p.m. |
Young Advocates Program
Younger advocates are more engaged now than ever before. During this program, young advocates have an opportunity to network and discuss best practices for recruiting and engaging fellow young advocates in the fight against Alzheimer's. Advocates age 18 to 35 are invited to participate. |
Tuesday, April 23 |
8:30-9:30 a.m. |
Keynote Presentation
Dr. Francis Collins, Director, National Institutes of Health |
9:45-10:45 a.m. |
General Session
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11 a.m.-12:15 p.m. |
Workshop Block I
These sessions will be repeated in the afternoon to ensure all Forum attendees receive the same information.
Federal Legislative Priorities
During this breakout session, you'll receive an in-depth briefing on the Association's federal legislative priorities. As an Alzheimer's advocate, we need your help in advancing the Association's legislative priorities on Capitol Hill. You'll learn what these priorities are and why they are important to our cause.
Advocacy 365
During these breakout sessions, you'll learn how to advance the Association's legislative priorities by delivering an effective message to members of Congress, their staffs and people in your community. You'll work with fellow attendees on tactics to build and leverage relationships with elected officials in both Washington and at home, and hone your skills as an advocate spokesperson for families dealing with Alzheimer's in your hometown. |
12:15-1:45 p.m. |
Lunch and Program
Featured Speaker
Stuart Rothenberg is editor and publisher of The Rothenberg Political Report, a non-partisan political newsletter covering U.S. House, Senate and gubernatorial campaigns, presidential politics and political developments. He is also a twice-a-week columnist for Roll Call, Capitol Hill's premier newspaper.
A frequent soundbite, Rothenberg has appeared on "Meet the Press," "This Week," "Face the Nation," "The NewsHour," "Nightline" and many other television programs. He is often quoted in the nation's major media, and his op-eds have appeared in The New York Times, The Washington Post, The Wall Street Journal and other newspapers. |
2-3:15 p.m. |
Workshop Block II
Repeat sessions; attendees will participate in the session they did not attend in the morning.
Federal Legislative Priorities
During this breakout session, you'll receive an in-depth briefing on the Association's federal legislative priorities. As an Alzheimer's advocate, we need your help in advancing the Association's legislative priorities on Capitol Hill. You'll learn what these priorities are and why they are important to our cause.
Advocacy 365
During these breakout sessions, you'll learn how to advance the Association's legislative priorities by delivering an effective message to members of Congress, their staffs and people in your community. You'll work with fellow attendees on tactics to build and leverage relationships with elected officials in both Washington and at home, and hone your skills as an advocate spokesperson for families dealing with Alzheimer's in your hometown.
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3:30-4:30 p.m. |
Breakout/Caucuses
This is your opportunity to caucus with your state's advocates, practice the "ask" for your Capitol Hill visit and receive your "leave behind" kits. Association staff will be on hand to answer last-minute questions.
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6:30-7:30 p.m. |
Reception
Join us for the start of an evening of inspiration and celebration. |
7:30-9:30 p.m. |
The National Alzheimer's Dinner
Our evening continues with the second annual National Alzheimer's Dinner, an event to raise awareness to benefit the care, support and research efforts of the Alzheimer's Association. Advocates will be joined by some of the country's most influential and respected political, business and entertainment leaders as they gather to celebrate advances — and to rally around this growing movement in our nation's capital.
All Forum attendees are invited to both the Reception and the National Dinner as guests of the Association and must pre-register in order to attend.
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Wednesday, April 24 |
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DFD Program
District-Forum-District (DFD) is a premier program for Advocacy Forum attendees designed to maximize the impact of their Forum visits on Capitol Hill. By meeting with members of Congress and/or their staff in local, congressional district offices before and after the Forum, advocates will amplify the message that Alzheimer's disease must be a national priority as well as hold congressional leaders accountable.
DFD participants are leaders in year-round advocacy and will receive special recognition at the Advocacy Forum. Your local Alzheimer's Association staff will help you coordinate your two local district meetings. Instructions for Capitol Hill visits will be sent to you with your confirmation materials once you have registered to attend the Forum.
Click here to become a participant.
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7–8 a.m. |
Breakfast and Closing Program
Kimberly Ann Reed, Chair, Public Policy Committee, Alzheimer's Association, National Board of Directors |
8 a.m.–5 p.m. |
Congressional Visits
Buses will begin departing from the Renaissance Hotel at 8 a.m. for Capitol Hill. Shuttle service will run between the hotel and Capitol Hill until 5 p.m. |
1–5 p.m. |
Hospitality Suite
Hospitality suites on Capitol Hill and at the Renaissance Hotel provide additional convenience as you conduct your meetings on Capitol Hill. Both locations will have facilities for you to complete your congressional visit forms and share details of your visits with policy staff and fellow advocates. |
