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2024 Strategic Grant (SG)

Develop Framework for Management and Aggregation of Datasets

Astha Kapoor
Aapti Episteme Research Foundation
Bangalore, India

Funding from the Alzheimer's Association supports the application of a framework for person-centered approaches to data collection and data sharing through a registry, building off of prior work by Aapti and Sage Bionetworks. This includes considerations around data sharing principles. Alzheimer’s Network for Treatment and Diagnostics (ALZ-NET) is a voluntary provider-enrolled patient registry that collects information on treatments for Alzheimer’s disease from patients being evaluated for or treated with novel FDA-approved Alzheimer’s therapies. Working closely with the ALZ-NET team, this project will inform the data use and sharing commitee structure. 

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