When I presented Mom with her birthday present, I couldn’t get my phone to record her reaction. The present was a big frame with eight photos of our family, and she loved it. So, what did I do? I took back the present, waited about 10 minutes, and gave it to her again. This time I filmed it—the same, wondrous reaction to seeing all her loved ones is now recorded.
I’m both amused and horrified by my use of Mom’s Alzheimer’s to get what I wanted.
What I really want is my mom back. I don’t want the child-like adult who needs constant watching, who can’t remember how to get dressed or brush her teeth, who thinks washing dishes is running them under a stream of water, who is inactive unless someone engages her in conversation, who does whatever I tell her because she trusts me.
If I could only eliminate her confusion, repair her dying brain functions.
We say goodbye a little at a time to the people we love. Mom is there in body but not in mind. And as she slips away from us, her memories, her life force, her very existence, become hollow. I shower her with love because my feelings towards her have not changed. We are bound by the inexplicable bonds that exist between a parent and a child. She is still my mom.
We’re in a hard transition. She is both present and absent, herself and someone else. It is painful to make the best of it, put on a happy face and care for Mom as if it were not a difficult burden. Sometimes I wish she were more compliant, less ornery, and less needy. Then I feel remorse. The alternative is too awful to contemplate. But it’s coming whether I like it or not. I need to accept and appreciate where she is now for soon she will only be absent.
This week, in order to distract myself and raise my spirits, I made sugar cookies. What’s fun about these cookies is the cookie cutters I found—all fun animal shapes, including a moose! Yes, Boris Badenov’s nemeses, “Moose and Squirrel.”
Sugar Cookies There are many variations of sugar cookies, each with a slightly different set of ingredients. I like this recipe with the added colored sprinkles. You can also decorate the cookies with sugar granules on top.
¾ cup oil 2 eggs 1 cup sugar 1 tsp vanilla 2¼ cup flour ½ tsp baking powder ½ tsp salt
Directions: Pre-heat oven to 350°. In a bowl, whisk together oil and eggs. Whisk in sugar and vanilla. Add remaining dry ingredients until a soft dough forms. Using a rolling pin, roll dough on a flat, floured surface until about ¼ inch thick. To add sprinkles, place sprinkles on dough and gently roll them into the dough. Press cookie cutters into dough and wiggle slightly so that the shape detaches from the dough. Lift and place on a cookie sheet. When you cannot make any more cookie shapes, gather remaining dough and roll out again on a floured surface. Repeat process. Bake cookies for 10 minutes at 350°.
About the Author: Miriam Green writes a weekly blog at thelostkichen.org that chronicles through prose, poetry and recipes her mother’s battle with Alzheimer’s. Her unpublished cookbook, “The Lost Kitchen: An Alzheimer’s Memoir and Cookbook” is filled with advice for the novice cook, easy and elegant recipes and home-spun caregiver advice. Her poem, “Questions My Mother Asked, Answers My Father Gave Her,” won the 2013 Reuben Rose Poetry prize. Miriam is a 20-year resident of Beer Sheva, Israel, and a mother of three.