— Report provides latest statistics and information on Alzheimer’s prevalence, incidence,
mortality and cost of care in Delaware, New Jersey and Pennsylvania, and nationally —
PHILADELPHIA, March 20, 2024 — The Alzheimer’s Association 2024 Alzheimer’s Disease
Facts and Figures report reveals that both dementia caregivers and health care workers report difficulties in navigating dementia care within the U.S. healthcare system. The report provides an in-depth look at the latest national and state-level statistics on Alzheimer’s disease prevalence, mortality, caregiving, dementia care workforce and costs of care. The new report estimates that 6.9 million people aged 65 and older in the U.S. are living with Alzheimer’s dementia, including 489,000 in Delaware, New Jersey and Pennsylvania.
This year the cost of caring for people living with Alzheimer’s and other dementias is projected to reach $360 billion—a $15 billion increase from a year ago. This does not include unpaid care provided by family caregivers and friends. Last year in Delaware, New Jersey and Pennsylvania there were 768,000 dementia family caregivers, providing 1.36B hours of unpaid care valued at $25.45B.
Caregivers in Delaware, New Jersey and Pennsylvania, and those across the country face significant emotional, physical and health-related challenges as result of caregiving, according to the report:
● Dementia caregivers report higher rates of chronic conditions, including stroke, heart disease, diabetes, and cancer compared to caregivers of people without dementia or non-caregivers.
Locally, the following percentages of caregivers reported at least one chronic condition:
○ 76% of caregivers in Pennsylvania
○ 62% of caregivers in New Jersey
○ 61% of caregivers in Delaware
● The prevalence of depression is higher among dementia caregivers when compared to caregivers for other conditions. Locally, the following percentages of caregivers reported experiencing depression:
○ 32% of caregivers in Pennsylvania
○ 27% of caregivers in New Jersey
○ 23% of caregivers in Delaware
● Seventy-four percent of dementia caregivers report they are “somewhat concerned" to “very concerned” about maintaining their own health since becoming a caregiver. Locally, the following percentages of caregivers reported poor physical health:
○ 16% of caregivers in Pennsylvania
○ 12.8% of caregivers in New Jersey
“Across our tri-state area, more than one million people are impacted by Alzheimer’s and dementia—either having been diagnosed, or providing care for a loved one. This report sheds light on the layers of impact, particularly for caregivers who can endure physical, mental and health-related effects,” said Kristina Fransel, Executive Director, Alzheimer’s Association Delaware Valley Chapter. “As the number of individuals living with Alzheimer’s or another dementia continues to grow, ensuring patients, their caregivers and families have a clear understanding of how to navigate dementia care resources is critical to improving health outcomes.”
An accompanying special report, Mapping a Better Future for Dementia Care Navigation, provides a comprehensive look into dementia care navigation by surveying dementia caregivers and health care workers on their experiences, challenges, awareness and perceptions of care navigation in dementia care. Dementia care navigation provides clinical and nonclinical support to people living with dementia and their caregivers to overcome barriers that compromise care and health outcomes.
Key findings include (nationally):
● In 2023, 11.5 million family and other caregivers of people living with Alzheimer’s or other
dementias provided an estimated 18.4 billion hours of unpaid care. On average, this
represents nearly 31 hours of care per caregiver per week or 1,612 hours per caregiver per
year.
● A majority of caregivers (70%) report that coordination of care is stressful.
○ More than half of caregivers surveyed (53%) said navigating health care was difficult.
○ 2 in 3 caregivers (66%) have difficulty finding resources and support for their needs.
● The top five stressors for caregivers are:
○ Cost (reported by 42% of caregivers)
○ Coordinating with multiple doctors (36%)
○ Securing appointments (35%)
○ Getting help taking a break (35%)
○ Finding appropriate doctors (32%)
● Care navigation facilitates medical and social support to alleviate patient and caregiver stress.
Despite coordinating care and scheduling being top stressors for caregivers, only half of the
caregivers surveyed (51%) have ever talked with a healthcare professional about challenges
finding their way through the healthcare system or asked for help with dementia care.
● Black and Hispanic caregivers report managing care on a daily basis (43% and 45%,
respectively) compared to White caregivers (31%).
● The vast majority of dementia caregivers (97%) say that they would find navigation services
helpful. Services cited most often by caregivers include:
○ A 24/7 helpline (36%).
○ Help with coordinating care and communication between different specialists (34%).
○ Getting help in understanding their care recipient’s condition (34%).
○ 60% of health care workers surveyed believe that the U.S. healthcare system is not
effectively helping patients and their families navigate dementia care. Nearly half
(46%) say that their organizations do not have a clearly defined process for care
coordination and clinical pathways for patients with mild cognitive impairment
(MCI), Alzheimer’s disease or other dementia.
“A key takeaway from this special report is that dementia caregivers want and need assistance in navigating what we know is a highly matrixed health care system,” Fransel added. “Given the added complexities of dementia care, we hope our report will encourage health systems and practices to think more intentionally about the challenges facing dementia caregivers and formalize dementia care navigation programs to better help them.”
Get additional statistics from the report for Alzheimer’s disease prevalence, mortality, cost of care, caregiving and dementia care workforce. Full text of the
2024 Alzheimer’s Disease Facts and Figures report, including the accompanying special report,
Mapping a Better Future for Dementia Care Navigation, can be viewed at
alz.org/facts. The report will also appear in the May 2024 issue of
Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association.
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About 2024 Alzheimer’s Disease Facts and Figures
The Alzheimer’s Association
2024 Alzheimer’s Disease Facts and Figures report is a comprehensive compilation of national statistics and information on Alzheimer’s disease and related dementias. The report conveys the impact of Alzheimer’s on individuals, families, government and the nation’s health care system. Since its 2007 inaugural release, the report has become the preeminent source covering the broad spectrum of Alzheimer’s issues. The
Facts and Figures report is an official publication of the Alzheimer’s Association.
About the Surveys
A full breakdown of survey methodology used to inform the
2024 Alzheimer’s Disease Facts and Figures report and accompanying special report,
Mapping a Better Future for Dementia Care Navigation, can be found on p. 98 of the report.
Alzheimer's Association
The Alzheimer's Association leads the way to end Alzheimer's and all other dementia — by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support. Our vision is a world without Alzheimer's and all other dementia.™ For more information, visit www.alz.org or call the 24/7 Helpline at 800.272.3900.