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Federal Policy Priorities

It's time to act. Public policy decisions must provide the resources necessary to support programs that affect people with Alzheimer's disease and their caregivers. Policymakers must enact public policies that provide better health and long-term coverage to ensure high-quality, cost-effective care for the millions of people who face this disease every day.

Legislation We Support:

Alzheimer's Research Funding

Alzheimer's is the most expensive disease in America, with costs set to skyrocket in the years ahead. To address this issue, Congress must devote the resources necessary to achieve breakthroughs in prevention and effective treatment of Alzheimer's. In 2012, an expert panel of scientists concluded that to achieve these tasks by 2025 – the goal established in the National Alzheimer's Plan – a rapid ramp up to two billion dollars in annual research funding is necessary.


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The BOLD Infrastructure for Alzheimer's Act

Working with bipartisan Congressional champions the Alzheimer's Association, through the Alzheimer's Impact Movement (AIM), was instrumental in the development and introduction of the Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act (S. 2076/H.R. 4256). The bill will create an Alzheimer's public health infrastructure across the country to implement effective Alzheimer's interventions,such as increasing early detection and diagnosis, reducing risk and preventing avoidable hospitalizations. The BOLD Infrastructure for Alzheimer's Act will also increase implementation of the Centers for Disease Control and Prevention's (CDC) Public Health Road Map nationwide by establishing Alzheimer's centers of excellence, providing cooperative agreements to public health departments, and increasing data collection, analysis and timely reporting. Learn more about the BOLD Infrastructure for Alzheimer's Act.


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Palliative and Hospice Care

Nearly half of all people with Alzheimer's and other dementias are in hospice care at the time of their death. Less than half of surveyed nursing homes have some sort of palliative care program. For people with advanced dementia, such care — which focuses on managing and easing symptoms, reducing pain and stress, and increasing comfort — improves quality of life, controls costs, and enhances patient and family satisfaction. But, as the demand for such care grows with the aging population, more must be done to ensure an adequately trained workforce. Learn more about palliative and hospice care.

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National Alzheimer's Project Act (NAPA)

The National Alzheimer's Project Act (NAPA) is the largest legislative victory in many years for the Alzheimer's cause, a law that established an integrated national plan to overcome the disease.

    More than 50,000 e-mails, 1,000 meetings and nearly 10,000 phone calls made by the Alzheimer's Association and its advocates led us to the historic legislative victory for the Alzheimer's community. Recognizing the growing Alzheimer's crisis, Congress unanimously passed and President Obama signed NAPA into law, calling for the creation of a National Alzheimer's Plan.

NAPA includes requirements to:

  • Coordinate Alzheimer's disease research and services across all federal agencies.
  • Accelerate the development of treatments that would prevent, halt, or reverse the course of Alzheimer's disease.
  • Improve early diagnosis and coordination of care and treatment of Alzheimer's disease.
  • Improve outcomes for ethnic and racial minority populations that are at higher risk for Alzheimer's disease.
  • Coordinate with international bodies to fight Alzheimer's globally.

NAPA will:

  • Increase the commitment to Alzheimer's research
    There continues to be a chronic underinvestment in Alzheimer's disease research. Providing resources to support the national plan is vital to finding needed treatments, developing prevention tools, and – one day – a cure.
  • Expand education efforts and caregiver support services
    In addition to the need to increase public awareness of Alzheimer's disease, it is critical that unpaid family caregivers and health care providers receive education, outreach and support.

NAPA also establishes the Advisory Council on Alzheimer's Research, Care, and Services and requires the Secretary of the U.S. Department of Health and Human Services (HHS) to work in collaboration with the Advisory Council to create and maintain the national plan.

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Alzheimer's Association

Our vision is a world without Alzheimer's
Formed in 1980, the Alzheimer's Association is the world's leading voluntary health organization in Alzheimer's care, support and research.