Alzheimer’s disease is a growing public health crisis in New York. Without an effective treatment or cure, the impact of Alzheimer’s will continue to rise and the numbers in New York are escalating.
The most recent data show:

  • 400,000 people aged 65 and older living with Alzheimer’s in New York.
  • 10.3 percent of people aged 45 and older have subjective cognitive decline.
  • 1,028,000 family caregivers bear the burden of the disease in New York.
  • 1.2 billion hours of unpaid care provided by Alzheimer’s caregivers.
  • $14.8 billion is the value of the unpaid care.
  • $4.8 billion is the cost of Alzheimer’s to the state Medicaid program.

These numbers show that a public health approach is necessary to lessen the burden and enhance the quality of life for those living with cognitive impairment and their families.

Learn more about New York: Alzheimer’s Statistics, Cognitive Decline, Dementia Caregiving

Public health spotlight

In New York, the State Department of Health oversees the Alzheimer’s Disease Caregiver Support Initiative (ADCSI), a five-year initiative designed to support caregivers and people with dementia in the community using evidence-based strategies.

Read the evaluation of the first year of the initiative.

Explore core areas

Find public health resources and examples that drive action across Alzheimer's-specific core areas.

Learn More

State plan overview

The New York State Coordinating Council for Services Related to Alzheimer's Disease and Other Dementias (Council) was established in 2007 by Public Health Law § 2004-a (Chapter 58 of the Laws of 2007, Part B). The Council was formed to facilitate interagency planning and policy-making, review specific agency initiatives for their impact on services related to the care of persons with dementia and their families, and provide a continuing forum for concerns and discussions related to the formulation of a comprehensive state policy for Alzheimer's disease.

The Council is charged with providing reports to the Governor and the Legislature every two years beginning in June 2009. The reports must set forth the Council’s recommendations for state policy relating to dementia and include a review of services initiated and coordinated by public and private agencies to meet the needs of persons with Alzheimer's disease and other dementias and their families, this report provides a beginning to this review. New York’s first state Alzheimer’s plan, the Annual Report of the New York State Coordinating Council for Services Related to Alzheimer’s Disease and Other Dementias in December 2009 with updated reports published in 2013, 2015, and 2017.

Resources for action

State and local public health agencies around the country are taking action against Alzheimer’s by implementing the Healthy Brain Initiative State and Local Public Health Partnerships to Address Dementia: The 2018-2023 Road Map. Public health practitioners can learn by example and find resources to help guide their response below.
 
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Implementation

New York State Department of Health New York State Department of Health, through its partnership with the University of Albany, conducted an online training for health care providers: Determining Caregiver Needs and Well Being.
State Department of Health New York State Department of Health informed public health professionals and others about the burden of Alzheimer’s disease and other dementias in the state and its impact on Medicaid service utilization and costs in a Medicaid Update newsletter.
State Department of Health The New York State Health Commissioner sent a November 2016 ‘Dear Colleague’ letter, encouraging health care providers to “play their part in the early detection/diagnosis of Alzheimer’s Disease and other dementias.” The letter highlights dementia prevalence data and various resources, including the NYS Alzheimer’s Disease Support Initiative
State Department of Health Contracted with the University of Albany to analyze a representative sample of Medicare Annual Wellness Visit data in large physician groups’ health IT systems to assess the extent to which physicians are routinely performing cognitive assessments.
State Department of Health New York State Department of Health awarded Centers of Excellence contracts to train physicians, nurses, and social workers about early detection and diagnosis.
State Department of Health New York State Department of Health joined the Alzheimer’s Workplace Alliance and is providing extensive training for employees on Alzheimer’s and caregiving in partnership with the Alzheimer’s Association. As a first step, department leaders posted an article on its intranet to announce this new effort, and the article will be shared with other NY state agencies to encourage them to join as well.
State Department of Health New York State Department of Health partnered with University of Albany to provide free CME online training for primary care physicians, along with informational resources and tools.
State Department of Health To address disparities, the New York State Department of Health funded a two-year referral and outreach demonstration project that primarily serves African-American and Hispanic communities

 
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Resources

Health Care Providers

Grand Rounds: The Science of Aging and Alzheimer's New York State Department of Health

BRFSS + Cognitive Decline

Alzheimer's Association Fact Sheet: Cognitive Decline in New York (2016)
Centers for Disease Control and Prevention Infographic: Cognitive Decline in New York (2016)
Alzheimer's Association Fact Sheet: Cognitive Decline in New York (2015)
Alzheimer's Association Infographic: Cognitive Decline in New York (2015)
Alzheimer's Association Fact Sheet: Cognitive Decline in New York (2013)
Alzheimer's Association Fact Sheet: Cognitive Decline in New York (2011)

BRFSS + Caregivers

Alzheimer's Association Fact Sheet: Dementia Caregiving in New York (2017)
Alzheimer's Association Fact Sheet: Dementia Caregiving in New York (2016)
Centers for Disease Control and Prevention Infographic: Caregiving in New York (2016)
Alzheimer's Association Fact Sheet: Dementia Caregiving in New York (2015)

Additional Resources

Grand Rounds: The Science of Aging and Alzheimer's New York State Department of Health
Grand Rounds: The Science of Aging and Alzheimer's New York State Department of Health