In January 2006 the Association established an advisory group composed of people in the early stages of Alzheimer's disease. The group is helping the Association provide the most appropriate services for people living with early-stage Alzheimer’s, raise awareness about early-stage issues and advocate with legislators to increase funding for research and support programs.
To learn more about the Early-Stage Advisory Group and Initiative:
Call for nominations
Submit a nomination (doc)
Please complete the electronic form.
The Alzheimer’s Association is seeking dynamic individuals living with early-stage Alzheimer's or related dementias to join the Early-Stage Advisory Group. This important group of advisors brings the unique perspective of persons living with the disease to key efforts of the national association, including advocacy, program and consumer awareness initiatives. For more information contact firstname.lastname@example.org.
- Nominee must have a diagnosis of early-stage Alzheimer’s or related dementias.
- Nominee must have the ability to travel (Expenses covered by Alzheimer's Association)
- Nominee must have the ability to participate in conference calls and use email
- Term is one year (July 1 to June 30)
The role of the Early-Stage Advisory Group is to:
- raise awareness about early-stage issues
- inform the public about the work of the Association
- act as a spokesperson for national media opportunities
- advocate to increase funding for research and support programs
- provide input to external groups (on behalf of the Association) regarding early-stage issues
- support the Association in providing the most appropriate services for people living with early-stage Alzheimer’s
Each advisor is selected for their personal experiences with the disease and the desire to use their voice to draw attention to early-stage issues. Former careers of advisors include corporate executives, health professionals, teachers, police officers, attorneys, architects, physicians, behavioral health counselors, hospitality professionals and more. Advisors are parents, grandparents, and in several cases, caregivers themselves.
Definition of Early Stage
"Early-Stage" refers to people, irrespective of age, who are diagnosed with Alzheimer’s disease or related disorders and are in the beginning stages of the disease. In this stage they retain the ability to participate in daily activities and in a give-and-take dialogue. This includes those persons with "younger onset" that develop dementia under age 65 and who are still in the early stages of the disease.