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    Advancing Public Policy

    Advancing Public Policy

    The Alzheimer's Association and the Alzheimer's Impact Movement (AIM), a separately incorporated advocacy affiliate, operate independently but join together to the extent allowed by law to continue to advance federal and state policy priorities. In collaboration with dedicated and passionate advocates, the Association and AIM achieved many successes in FY25 on the national, state and local levels, even in the face of external factors impacting their work.

    The Association and AIM continued tireless efforts to urge lawmakers for an increase in federal Alzheimer's and dementia research funding at the National Institutes of Health. Due to a full-year continuing resolution, this funding remained at the FY24 level of as much as $3.8 billion.

    Association and AIM advocates, in collaboration with congressional champions, were instrumental in the NAPA Reauthorization Act and the Alzheimer's Accountability and Investment Act — two pieces of critical bipartisan legislation that renew the nation's commitment to the fight against Alzheimer's and all other dementia — being signed into law. These bills — passed unanimously out of Congress — will continue the critical work of the National Plan to Address Alzheimer's Disease to support Alzheimer's research and improve the delivery of clinical care and services for people impacted by the disease.

    The bipartisan BOLD Reauthorization Act, legislation which will enable public health departments to implement effective dementia interventions, was signed into law. The bill, passed unanimously out of Congress, will reauthorize the Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act and expand the law's impact further into communities.

    The Association and AIM, along with AARP and members of Congress, supported the introduction of the bipartisan Credit for Caring Act. This important legislation is aimed at providing much-needed financial relief to family caregivers nationwide, including those caring for people living with Alzheimer's and other dementia. The bill would offset the cost of some caregiving expenses, such as a home care aide, adult day services, home modifications and respite care.

    The Association and AIM worked with longstanding bipartisan champions to reintroduce the Accelerating Access to Dementia & Alzheimer's Provider Training (AADAPT) Act in the House of Representatives. AADAPT will improve dementia workforce preparedness in communities across the nation by empowering primary care providers to better diagnose Alzheimer's and other dementia and deliver high-quality, person-centered care in community-based settings.

    More than 1,100 passionate advocates from all 50 states gathered in Washington, D.C., for the 2025 Alzheimer's Impact Movement (AIM) Advocacy Forum, the nation's premier Alzheimer's advocacy event, and attendees implored Congress to do more, not less, in the fight against the disease. On the Forum's Hill Day, advocates turned Capitol Hill purple and rallied bipartisan support for legislation crucial to the Alzheimer's community. 

    Emceed by actor Diedrich Bader, the National Alzheimer's Dinner at the AIM Advocacy Forum celebrated advocate volunteer accomplishments and recognized policy leaders for their critical efforts in the fight against the disease. Sen. Catherine Cortez Masto (D-Nev.) and Sen. Bill Cassidy (R-La.). were honored with AIM Humanitarian Awards for their continued action to address the Alzheimer's crisis and to help affected families.

    State policy victories in FY25 included: Illinois' first-in-the-nation legislation requiring state-regulated insurance plans to provide coverage for all medically necessary U.S. Food and Drug Administration-approved treatments or medications prescribed to slow the progression of Alzheimer's and other dementia, and coverage of diagnostic testing needed to confirm an Alzheimer's diagnosis; Louisiana appropriating $824,000 for a Dementia Care Specialist Program within the Governor's Office of Elderly Affairs to increase community and resources available to support individuals living with dementia and their caregivers; Hawaii establishing a two-year Dementia Data Pilot Program within the Executive Office on Aging to collect and analyze cognitive assessment data and for the office to publish annual reports; and Texas creating the Dementia Prevention and Research Institute of Texas and the Dementia Prevention Research Fund, as well as a ballot initiative that would transfer $3 billion from state general revenue to providing funding for the Dementia Prevention and Research Fund over the next 10 years.

    The Association hosted the third annual State Dementia Services Coordinator Summit in the nation's capital as part of an ongoing effort to coordinate the Alzheimer's and dementia response at the state level. The summit convened state agency officials tasked with developing, advancing and implementing dementia-specific policies and to discuss how they can better implement solutions and increase support for Americans impacted by dementia. 

    Alzheimer's advocates secured $209 million in dementia-specific funding from 35 state governments and Washington, D.C. (a $223.4 million effective total when biennial budgets are annualized). This was a 27% increase compared to 2022, the last short-session year.